5) dated 12.21.2002: Report second opinion on MRI results of Karen nuanced and hopeful
Today, Karen and her husband in another hospital for a second opinion sort of occasion the MRI scans were made. Karen was also asked if I did that and meewilde. The oncologist told us that he was nothing to do with the scans because there is no previous scan was made. If he was any effect of CLT treatment disregarded his advice would have a PET scan and if this would see that there are no metastases in the bones and liver for example, his advice would be chemotherapy, surgery and nabestralen. But if Karen would have been spread that opinion, although the same but he would leave it to Karen because he thinks that in principle it is incurable.
Regarding the effects of CLT a few things from a conversation of 2 1 / 2 hour:
Nevertheless remarkable that the fluid from the breast does not smell / stink, although it may perhaps later, but it is remarkable.
Color and size of the breast indicate a high inflammatory state within the breast. The oncologist had a nice word, but I forgot.
Axillary metastasis is feeling well after the first diagnosis increased, but following treatment may not be, but about missing data. Now the oncologist's words ringing of Karen and her husband, who say that after the first treatment of the breast has been growing quality scale, according to doctors in Ireland by the fluid, but in recent weeks has diminished somewhat. therefore, the oncologist are no meaningful words about it. However, he feels above the metastases in the axillary lymph nodes a few other, but may also be because the inflammation in her chest the lymph nodes swollen. Because the breast of Karen as an aggressive species is diagnosed, such a low growth / decline in size may even be said the remarkable words of the oncologist, but he stressed that everything he says just words are not supported by factual investigation are supported, so in fact irrelevant.
Similarly, the primary tumor, after initial diagnosis in late August / early September, has grown significantly, after treatment October 22, 2002 no longer measured / examined because ziekenhuisoncoloog and doctor second opinion in Karen's hometown have failed to MRI or CT scan and / or blood tests, etc. to mid October.
In short, this consultation might as well be written dismissed were it not that Karen is now going to be professionally managed. (The other physician / surgeon, the female doctor at the University Hospital where the scan results was discussed and that I inadvertently becoming oncologist mention in my report, see elsewhere on this page is no oncologist turned out. Based on an MRI scan which is nothing to see this doctor / surgeon Karen put under huge pressure to start chemo, etc. Personally I think this is reason for logging in to the Inspectorate of Public Health. I mean the doctor will hopefully mean all very well and this purely out of concern have done, but even the very self of Karen put under huge pressure, how it all ends well)
Positive in this second opinion is that the oncologist this afternoon is in contact with Dr. Porter from Ireland and they will in the coming weeks / months Karen each from their own specialist to guide and send each other's findings and discuss and hopefully, together give Karen an optimal guidance.
Next Monday is also new documentation of other breast cancer patients treated with CLT in Ireland and cured under the heading of confidentiality to the Netherlands.
For Karen is a PET scan as soon as possible and settled on the basis of which will see more about the effects of CLT - Cytoluminescent Therapy and how to continue.
It is unfortunate that this is all a waste of time, the PET scan had been made last week and should be more like Karen had gone to the hospital. Anyway hopefully now stood.
Karen is optimistic, though sometimes frightened, but her chest still seems to be declining slowly, but yes the color is violet, large, etc. Again, I have very great admiration for her and her husband so that you can remain calm and do not panic, but a treatment that has the oncologists proposals. But the oncologist was very open, but critical and worrying and that is good in his position I think, but the PET scan with Karen will still give more clarity. Also Dr.. porter from Ireland said that only a PET scan can show whether the CLT-therapy with Karen starts.
If any of you still ownown who wants to Ireland please contact me in advance regarding recording situation before etc. etc. Perhaps I can assist some of the experiences of Karen and protect you from unexpected and unexplained effects of CLT treatment. I will provide all medical records, etc. is absolutely confidential and may experience only after approval you may have in this website.
And now I stop a minute and a week doing nothing, but with my daughter and wife try to see if we have a family and do something fun together. Some e-mails from previous days / week (now 147 unanswered), I will answer next day, but otherwise I take during the Christmas holidays also take away from everything. Messages which arrive after today 20/12/2002 for me to be answered until after January 4, 2003.
