7) dated 04.01.2003: Results of PET scan Karen twofold. Read full report with official reaction from Irish doctor.

Date of this letter January 4, 2003:

dated January 2, 2003 Karen received the results of the PET scan. A rash that is twofold to establish and Karen and her husband gave very varying feelings and puts enormous pressure on their shoulders. I was there in person so what I am about to write is my observation and interpretation, but I illustrate two reactions in addition to the official results of the PET scan, one of the oncologist in the Netherlands (for placement of this reaction, I ask for permission, so hopefully tomorrow it) and one of the doctors in Ireland. It is up to each individual for what value to attach this information. The decision itself CLT Cytoluminescent therapy to do this, I in no way influence. On all our disclaimer applies and all we want to do this is as independent as possible information. I would just like to say that I'm probably not completely unbiased because I feel emotionally involved with Karen and her husband, and perhaps everything seems to be favorable or hopeful indicators. But I can not help but try one and another as factual as possible below display. I deliberately choose a very extensive story because I realize more and more how much pressure is on to the CLT Karen process to stop and just give in to the classic oncological advice. Similarly, I see and experience, from other stories that if you choose a slightly different or complementary approach that you should be very alert, also mentally very strong to continue with your own choices to continue. It only needs something to happen and you will be brought down. It's also good for that one moment never reaching decisions, but please always go home, let the first emotions bags, talk to your neighbors / friends about it and then take a rational decision based on facts. That's why this comprehensive report.

A report of the PET scan and its outcome that was created by Karen dated January 2, 2003:

At 10.45 hours notify Karen and her husband joined a hospital somewhere in the Netherlands. At the request of the oncologist Karen, this PET scan taken earlier because a liver ultrasound provisional results showed a normally functioning liver, while the LDH levels were very high (normal <400, Karen LDH 3950). These values ​​would indicate, according to the oncologist in two different things, namely whether in the liver have been so many tumors that actively inhibit liver function or there is a large tumor mortality. This would mean that the CLT - Cytoluminescent Therapy works at least in part, would have done. The PET scan and another one would have to confirm.

Karen was first a radioactive dust injected (there was before said that this is absolutely no harm and within hours of the PET scan of your body is gone. See on this page what a PET scan is and relates to other types of scans) must show that the cells can and can not absorb glucose. Cells that asset to a large amount of glucose in cancer cells and active principle, are also shown on the scan. Later it turns out that the same inflammatory signals and can be confused with tumors and is the result of Karen confusing. But see later in this report.
Karen can not talk 45 minutes and must rest on a bed before the actual scan can be made. It has its own music (CD), take it. The PET scan machine looks like an MRI machine, except that the round tube that you are much shorter. I myself have an MRI scan as very distressing experience because I felt so trapped in that long tube. The nuclear medical specialist was very helpful and friendly and even put on camera what a PET scan, etc. I meant to say that everyone we meet in the hospital from the tea lady to the oncologist warmly and kindly. It may also sometimes said as there are many other experiences. But this hospital was a relief.

The PET scan lasted 35 minutes with Karen and she gave in response that it was all very relaxed. Later she had ten extra minutes because the scan of her liver could not properly be made. It was painful Karen said later, because her breasts continuously lit up should be held to the liver is to scan. However Karen said she was very nervous about the outcome: "I do not expect all of my cancer is already dead, it could not, according to doctors in Ireland, but I hope much. And I no further metastases in my liver / bone me. Look, I'm not afraid to die and if it should be then so be it. Perhaps it is quieter and better in the hereafter than here. But I would for my husband and children very much worse available. especially how I explain to my children that I have these choices I made ​​and I mean my death warrant got signed. And how do I explain that Mom's deepest sense of error was. How do I explain to my children that they had not in themselves, have to rely on their feelings. That would me the biggest disappointment. But I'm now anticipating something I do not know. I remain hopeful because I actually physically feel very good but I hope very soon the to get results, because I lie there at night awakening ".

That desire comes out soon because if we have a half hour later with the oncologist, he is sitting by a colleague called and preliminary results. The results in the eyes of the oncologist purely negative, in the eyes of Karen and her husband first time, later this round and they see many positive things correctly. The oncologist (based on a telephone outcome of a few minutes and not based on an actual official release) says this almost literally, but by me from memory and video recordings written: "Your left breast is bright positive with a metastasis in left armpit continuously until your shoulder blade (he used a more medical term, but later told that this down to the shoulder blade was). Your right breast is clean, your liver is clean, your lungs are clean (photo from another hospital was also confirmed ), your bones are clean. We do see under your right armpit a thickening of a lymph node that is inflamed or metastasis, or a remote means. This means mrs. K. that you have metastatic breast cancer with distant metastases. I urge you to strongly immediately chemo to start, followed by possible surgery and after five years hormone therapy. No word on clean delivery which is, after proving that high LDH levels now are caused by a large tumor mortality and no tumor growth in liver. Later, the oncologist confirm this, but says there is in that tumor mortality can also be caused by a spontaneous mortality and not explicitly by the CLT - Cytoluminescent therapy would have caused. (dated January 6: This writes the oncologist me as a supplement : LDH increase occurs when a large tumor load, because the vascularity of these large tumors is inadequate. It means in this case that many tumor / the extent to which inflammation plays a role is difficult to estimate, but it too far as this natural decay only to interpret) Well it'sjust what you want to believe. Personally I found it not fair to Karen and her husband because the oncologist in the week before had said several times that the high liver levels indeed may have to do with a large tumor mortality. Now he is again more a blow to the arm. As a very preliminary result which is twofold, and where so much depends for Karen so negative bring in my personal opinion is not entirely correct. Is certainly not the way I relate to people and patients want to communicate. But yes, I'm not a doctor / oncologist as oncologist who knows nothing of the effects and side effects of CLT treatment on the basis of his lack of knowledge about certain facts, and so perhaps should respond. I understand that, but it remains in my eyes, messy and not exactly understanding and sympathetic to a patient.

dated January 6, 2003: supplement to the oncologist: the lymph nodes of both the mediastinum, right axilla and left neck showing hotspots, which indicates mi distant metastases in addition to those already known in the left chest and left armpit. This is not good news!. The fact that the liver, lungs and bones are clean yet is beautiful but unfortunately the outcome of disease is determined by the anomalies, not the bodies that still do well.

The blow is visible and palpable with Karen and her husband. At least I feel a tremendous excitement in that little hospital room. Karen also stores closed, can initially say no more / request. Karen later told me that she was happy with clean lungs, liver and bones. Karen also tells me and that she had done once before in Ireland that they already had seen through the spirulina and a screen that is now observed metastases were already on October 22. Even when metastases were seen in her belly, in her lymph nodes and in her other breast. These are apparently lost or not traceable. In an aggressive type of breast cancer so this is surely very remarkable. But this tells me Karen hours later. At the time of the notice hit them completely. Luckily her husband about this and I've also tried to clarify some questions by some. Some of these questions have Karen and her husband later in an e-mail to the oncologist once formulated and put them here without me, but anonymous down. In brackets are the short answers to the oncologist to this e-mail:

Dear Dr. .....,

Before we have some questions for you to submit to demands that we thank you for all the time and effort you for us. We appreciate your open and positive critical attitude. You pointed me enough that I take risks and have taken and I understand your concern. The result of yesterday have some questions for us called. I hope you want to answer. (We have the answers already, but I want the oncologist explicit permission to include here on the Site, so the questions first, hopefully tomorrow the answers)

1. The PET scan gives a result which indicates that there are many active cancer in my left breast and a few distant metastases. To what extent is to determine how many tumor cells operate and where they are. I'm in Ireland on a screen by the luminous matter seen where my tumor and metastases were and would be very happy to PET scan and possibly an expert reader there the pictures / images of the PET scan to check. My memory is not a tangible proof for you, but I'm pretty accurate to indicate where in Ireland on the monitor metastases were visible. It was for me a lot of clarity when I am using the images of the PET scan could determine where and how big the tumors are currently active.

Is it possible to have an appointment next week before it? I would therefore MRI images from December 11 to take for comparison. (Kees would like to keep up with his camera so we can record some video also set to take to Ireland).

Response of the Dutch oncologist is that he is no reason to do something more with us to discuss. He has been clear. I will try briefly to show what his opinion is and why he has trouble with the CLT-Cytoluminescent therapy and the choice of Karen:

The oncologist is the situation in Karen worrying because there is distant metastases, and Karen as a treatment raises undergone no scientific evidence and where no animal testing is done with it. He feels sorry that there are not from the very beginning, so prior to the CLT-therapy scan and a thorough investigation is done and this is repeated after one month and two months for example nez. In short, if you want to prove a new therapy, you will also need to keep a good documentation. The oncologist said that he based on his knowledge and experience here one woman sees him sitting with metastatic breast cancer and can not but her advice as he considers necessary and her well to warn of possible consequences that the CLT treatment do not do what is claimed and promised. I must say I am that he agrees. It is very sloppy and amateurish of doctors from Ireland that there is no good documentation is maintained and the effects of inflammation, which also commonly known as ever, if as a result of PDT treatment as such by subsequent treatment recommendations are accompanied by patients. But what a pity I keep finding is that an oncologist who also works as a scientist is not curious to know more of it and such to come with us to Ireland.

2. How common is it to know that your breast cancer the tumor has broken through the skin without metastases are traced in lungs, other breast, liver and bones? We are told that this never occurs. Is that correct?

Here we have not received an answer. Another doctor told us that it is very unlikely that this occurs.

3. The elevated LDH values ​​now seem to be caused by large tumor mortality. How often does large amounts of cancer mortality in this degree of spontaneous? In other cases of spontaneous tumor mortality LDH values ​​so high?

Answer oncologist: LDH increase occurs when a large tumor load, because the vascularity of these large tumors is inadequate. It means in this case that many tumor / the extent to which inflammation plays a role is difficult to estimate, but it goes too far as this natural decay only to interpret.


4. Deep in my heart I would one / two months to wait, but if I understand you correctly so I take a huge risk. Doctor ..... suggested two weeks ago that I was terminally ill. There is a protocol that says that without metastases in the liver / lung and bone healing is possible. There is a protocol that says when a tumor through the skin is no longer possible cure. Is there something really obvious questions about survival in my specific situation? Both you as a doctor ..... have my opinion and honestly informed about upcoming stories, yet I feel as a patient becoming a victim of protocols.

Not the oncologist, but from another doctor, a specialist in PDT, we got this answer: given that the metastatic breast cancer by Karen hardly grew after October 22, 2002 Karen, I recommend all have a quiet waiting. Inflammation in PDT are always there and the pain that comes with it is understandable and logical. Wait a month can not hurt and does little additional risk. Consulted another doctor told us that Karen now decides not to start the chemo. Her liver and kidneys are already under enormous pressure by the apparently large protein degradation (my words) and chemo would only increase this pressure. This would life be dangerous and permanent damage to liver and kidneys could result. (Editorial Note: should the two oncologists Karen directly and inexorably to the chemo would put it not know? I think so strange, and who should Karen now believe because both doctors are knowledgeable and honest)

5. Are you willing to go with us to Ireland?. When you join us you can by using proper documentation, photographs and a personal interview on the spot assessment of how the CLT-treatment works. If your results are positive then, you have the choice as individuals, or as Dr. .... your hospital or not to go to your constituency. If your anxious suspicions are confirmed, you are much clearer and more professional opinion on treatment in Ireland, providing you with multiple levels of service to many people. In short it is a win win situation for you. When very sensitive to your hospital management can also decide not to go or not to have been? We would like to leave Sunday, January 12 Tuesday or Wednesday and then want to come back. I would really appreciate it because I'm cutting edge, with the sword of Damocles above me. A critical dialogue between you (the sober Dutch with over twenty years experience) and an American who treats 15 patients each week and the world of cancer is cured, my stage is probably the only chance to clarify what time in Ireland going on and what I do best.

Answer from the oncologist that he does not want to Ireland, because he is very busy and because he wants to wait on what we will hear it.

Like to hear from you if we can come next week.

Mvgr. Karen ....

cc Kees Braam

Here the answer of Dr.. Porter in an e-mail with the results of the PET scan to the Dutch oncologist Dr. Porter sent. For that first email, I ask permission to publish, but here the answer of Dr.. Porter. Some important phrases on the results already published for that I can publish it to Karen.

My school English translation of excerpt below in English:

Currently showing the echo of the liver and chest X-ray no abnormalities. The deoxyglucosepetscan shows (hotspots) spots on the scanning activity shows or inflammatory or active tumor in the left breast (the whole area), in those lymph nodes and medistinale lymph nodes, which means that there is already a metastatic disease (disease with distant metastases). Biochemical: LDH 3950 (N = <400), tumor markers: CA 15.3 = 98 (N <35). I definitely recommend chemotherapy.

At this moment other liver ultrasound and x-ray are without obvious abnormalities. The deoxyglucose-PET scan today and shows hot spots in the left breast (entire area), and the mediastinal lymphnodes lymphnodes Mentioned, Which MEANS That Already there is meta-static disease. Biochemistry: 3950 LDH (N = <400), tumor markers: CA 15.3 = 98 (N <35). Certainly I advise chemotherapy.


Dear Dr. ......: Thank you for the update on Karen ...... Our experience HAS Shown thats the PET scan done with only a few months of the PDT therapy would not accurately Indicating the status of the tumor. Because Of The Amount of significant breakdown of tumor following the CLT (PDT) treatment there was a significant change in the Amount of inflammatory area of ​​the tumor and the Increased metabolic activity of the active inflammatory process May mimic active tumor uptake. This process of tumor breakdown for May last up to 6-8 months following treatment, and it was only after the passage of active inflammation thats the PET scan, in our opinion and experience, can be Considered an accurate determinate of tumor activity. Likewise, an MRI would show Increased density in the areas of tumor necrosis and inflammation if taken early on (while active inflammatory changes are in progress.) This Too May Be Confused with tumor activity. Additionally, elevated tumor markers are communicating only seen following this therapy from CLT fragmentation or tumor so early on this too confusing if not May Be seen in the light of the treatment dynamics.
This therapy does not compromise Subsequent therapies and it is entirely at the option of the patient to Decide if They wish to under take Further or Additional therapies (chemo, etc.) As a matter of background, my wife was diagnosed with invasive ductal carcinoma of the right breast with margins not being clear who has not had any chemo, radiation or other surgeries aside from the biopsy. Her treatment consisted HAS Primarily or PDT / CLT and Evista (now discontinued) and she has no evidence of tumor on MRI or elevated tumor markers.

Our websites are www.cancerclt.comm with another link to a more technical site. Also there is a 6 page feature article on PDT in the January issue of Scientific American That You Might find informative. (For those interested in this article that I can digitally send you me via e-mail asking) If you wish to come to Ireland to see the images of Patients Treated and some very interesting fluroscans or breast cancer, we would be happy to share our knowledge of this most exciting evolving therapy. I Am Also Including an article on breast cancer recurring Which Might you find interesting. All the best William Porter, MD

You will understand that Karen and her husband are huge difficult decisions. As early as December, an oncologist told her that by the conventional oncology would definitely not be permanently cured. Now let the PET scan again a small possibility due to the absence of metastases in the liver and lungs and bones. Another physician consulted told us later that it was his opinion NEVER occurs when a tumor from the breast skin back is like Karen seems to have happened according to the oncologist and visible (see photos that I requested digital can send out Karen's breast) to avoid simultaneous existence of metastases in bone / lung. Apparently, the CLT-therapy Cytoluminescent therefore be at least partially working. The metastasis are not increased or otherwise become her other breast now appears completely clean, while in Ireland really small tumors in her breast were traced, at least that tells me Karen, compared to mid-October in Ireland. And thus seem the more elevated LDH levels caused by a large tumor mortality and not by tumor growth in the liver. The oncologist confirmed that. And still there is absolutely no odor or smelly wound in her chest where Karen's 'cancer' comes through the skin. So all positive facts. But despite this it is very remarkable things, the Dutch oncologist right now that Karen surgery with chemotherapy and possibly even a small chance of complete cure. An opportunity in October Karen was not imputed. I would hate to be in the shoes of Karen to include a decision now, but I hope we can support her through our site to clarify what wisdom is, but unfortunately or fortunately, she is the scratch decision. We plan together with Karen to go to Ireland this weekend and hopethere to clarify and hopefully some other cured patients to speak to. We are also busy with a doctor PDT to Ireland to ask and to try to CLT - Cytoluminescent therapy trial in the Netherlands as the ground.

Finally. There are now several days has elapsed after Thursday and the hope and optimism for Karen and her husband further corroborated by information from other doctors on the outcome far more positive than the Dutch oncologist. But tell us later because we want better foundation. We have also been in touch with some American patients who have been in Ireland in November, as the CLT - Cytoluminescent therapy have undergone part of the trial group of Dr. Ralph Moss. With very interesting experiences, similar to that of Karen, but all it seems positively to unpack. We will keep you informed as soon as we learn more and to make known now because I get regular e-mails from people who accuse me that I grow and even false hope to patients, oncologists say that I am an impostor, and this very site bad for oncologists and patients. I have absolutely no sense to comment, but I can only again say that I in all integrity and sincerity is my duty is to cancer information on promising therapies as CLT - Cytoluminescent Therapy and the incredible courage and perseverance of Karen and her husband. Of course I would prefer hard scientific proof, but many treatments and medicines for cancer that takes years and years and years. And there are many cancer patients do not have time anymore. I take this risk aware that I sometimes get too excited too early and put on the site and later overtaken by the facts. That's too bad, but if you breed false hope than sorry, I can only say for myself that no hope is no life. And I / we are absolutely free of any interest whatsoever. (Please read our disclaimer) . Some of the hospitals / oncologists / pharmaceutical industry, I do not always be said. I also do look at this separate page of this report calls for aid to Karen and to establish its center. So who wants to support Karen and we can read here.