Experience stories of cancer patients how to live with cancer and / or survival.
This site has evolved from the experiences of three of us. Anthony (see Antoine medical records ), Shifra and her parents (see Shifra medical record ) and Kees (See Kees medical records ). But we are convinced that many other people with similar stories and experiences. On this page, we want stories consultation and contact with the sender. So you can tell your story, but we at least know where the story is based. You should contact the editor .
Added May 9, 2011: Please read the warning to Dr. Robert Gorter and the Medical Center Cologne. Dr. Robert Gorter has become discredited in Germany and Egypt and we distance ourselves from Dr. Robert Gorter. Click here or ask for detailed explanation of why we are reliable physician Dr. Robert Gorter no longer available.
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Experience Story melanoma: Mrs. D. four years remained free of tumors of stage IV melanoma using dendritic cell therapy and Houtsmuller Diet, but was recently operated on for new recurrence. Article updated January 16, 2011
January 16, 2011: Last week, several times called by Eef. It is in itself fine with her after the surgery. She was home the next day. In AvL really nothing more they can do for her. Radiation would still be a possibility but the doctor did not start the time being still. Eef now wants it back the hyperthermia and possibly dendritic cell picking at Dr.. Gorter. It is now exactly one year ago that she stopped. Hopefully this treatment are also long been a relapse occur.
January 7, 2011: Eef a few weeks ago had surgery for an operative relapse in her breast. Last year she was intensively treated with antibiotics for her so erysipelas. Checks then showed that everything was under control but a new inspection in late November showed a rise of relapse seen. A few weeks later a tumor the size of 1 cm. average surgically removed in the AVL. Let's hope this one-off operation has been caused by intensive antibiotic and no new launch of recurrence of her melanoma. It is quite remarkable that after four years Eef another recideif get from a stage 4 melanoma. Eef does have its erysipelas, etc. for a year with no treatment had hyperthermia and dendritic cells, and the question is whether this could be a cause. that her immune system still needs to gain additional momentum from the dendritic cells.
October 8, 2010: several times in recent days with Eef called. It's just fine with her last summer after she struggled with her chronic erysipelas. Now they can control and Eef again fully active. Next week she gets her halfjaarljkse dendritic cells.
April 23, 2010:
A similar story as Mrs. experience. van Deelen, Eric. He also had a stage 4 melanoma and is now 3.5 years recurrence free at the same way as Mrs van Deelen. Eric is his story here .
Monday, April 12, 2010, Ms. van Deelen control again in the Anthony van Leeuwenhoek Hospital. And all was well again. Her blood counts were still good and nothing indicates a recurrence of her melanoma . So a great result. See left column or click here for video of mrs. van Deelen.
Here is the poignant story of Mrs. D. She was first operated on a melanoma in 1996. This was followed by an operation every year somewhere else in her body. After they had rejected Nijmegen dendritic celhterapie late 2005 she went to Dr. Gorter in the Medical Center Cologne . They started in Cologne with a treatment of dendritic cell therapy in combination with hyperthermia and immune stimulant infusions including an infusion of vitamin C. Also attended the wedding and follows Mrs. Houtsmuller Diet and tries to live as healthy as possible. And this was the approach deemed necessary because after a lung operation in 2006, Mrs. further remaining free of new tumors. It is now very fine. Next week we will publish her story on video, but here you have the written texts from the video read.
Mrs van Deelen
Survive a star of stage IV melanoma.
Eef says:
You'll accept anything. Snaps you back a bit. You do anything and you get the weer.En again.
And each time more restrictions that I found very difficult. Unable to walk.
I had back surgery by an dropfoot So even with a leg that was insensitive.
So I could have difficulty walking. So I thought it was very difficult. Ever on
waiting lists. And I also think you are very hard around you can tell.
That you can not do many things and always have that tension.
And on the other hand, I happen to love gay because I would love to just live.
1 Comment Text:
Mrs van Deelen 14 years has been suffering the effects of a melanoma, a malignant form of skin cancer. In 1996,
for the first time it detects a tumor.
Recurrent operations, investigations and treatments
have a great impact on her daily life also knows her best friend who has experienced everything closely.
Teus says:
Well she always had a small pit, a black dot on her leg and then is that at a given
moment when she is grown and on the advice of the doctor went to the doctor. She geljk
went to Amsterdam. She said then I geljk well. not knowing that it was true.
And then she was only the result was when she told me the doctor hit a poor
because of the back and said that it was a melanoma. Well, when she did not really know what it was
and she called me and said, joh she said I have a melanoma.
and I say: Wow Wow that's not so good.
Then of course everything started rolling. In 1996 she was operated on, so
First a bit removed, and indeed it was. And then the larger piece was then removed
and eventually out of the groin glands under the arms out, look at the lungs,
in the abdomen, so almost every year and it was something that gave a lot of stress
course. Quite a lot of stress.
Comment Text 2:
In the Netherlands, Ms. van Deelen hit by recurrent treatments and operations increasingly uitbehandeld.
In her everyday life she experiences increasing constraints. To her great frustration in the Netherlands done little to
addressing and identifying the causes of melanoma.
Eef says:
You can be operated on and they do well but there are no other means and it is not developed.
Melanoma, these cancers are too rare. If you have breast cancer, prostate cancer, there is now much
research and development for drugs but that is not with us so I think very much in the Netherlands.
Comment Text 3:
In 2005, after yet another surgery, Ms. van Deelen by her oncologist yet nominated to participate
a phase II study of dendritic cell therapy.
Eef says:
When I was a doctor Haanen begun to try, because I was still in stage 3 had stage 3 means
even better if you could and then did you qualify for the dendritic cell therapy.
So that is when my blood sample and in contact with Dr. Radboud point in my blood and it was
not good or I was excluded, or both but at least I did not qualify.
Then I tried to intervene as private but when it became clear that the Cologne
was cheaper, a lot, as in Nijmegen. While I must pay for it myself because the insurance pays not.
When I'm through doctor Tusenius in Bilthoven, which is also an internist, through him I have this address from Gorter,
that said if you are rejected then you can probably try it anyway. Well we have talked a lot about how home
to that with that money because it's still a lot of money.
So when we chose Cologne and that was the beginning.
Comment Text 4:
Because the treatments in Cologne were not reimbursed, Ms van Deelen and her friend there still
extensively discussed how to solve.
Eef said:
In principle I'm Teus said what up, a group of friends via computer to everyone ... but they all
money. In America, they do so she said coolly that money comes, they do it so well that happens
here.
Well so far we do not really need to do and when we are together for an interview
went and saw we both sat down. You too.
Teus says: And we went together to Houtsmuller.
Eef says: Going to Houtsmuller and yes it was very nice
Teus says that when I looked in the computer, where is that and made an appointment.
Eef says: When I have a very long medication had him for nothing.
Comment Text 5:
by the many negative publicity on the Internet of the Association against Quackery about Dr. Gorter was
Ms van Deelen and her friend very carefully. Still was the first contact is very reasonable and
Dr. Gorter was just a concerned doctor who promised nothing but clearly could explain what his approach is.
Robert says:
The idea of using immunotherapy to do in conjunction with fever was actually a very logical step. There is much literature
on the positive side effects of fever and therefore I have decided, for example, if we dendritic
cells give it if it is possible to immediately following a period of fever.
If you studied well and understands what fever does, the body also plays a role in evolution.
The more complex an organism functions better the more it is independent of the environment of their own body temperature.
But the easier you can make in an organism fever emergency, the better it can survive. And by understanding what
fever occurs and which functions better in the body and activated it for me a very logical step to
fever to induce dendritic cells just before you give.
Teus says he gives a lot of confidence and well there are many people who are better and well it's not
100 percent natural, but of course that was very nice. He gives confidence even though I ..... anyway ...
Eef says: you are suspicious
Teus says yes, for that matter a bit. More than they think but at least I did think of here is someone who really
has seen good results so I thought that was a nice incentive.
Comment Text 6:
In 2005, Ms. van Deelen begins with the treatments in the Medical Center Cologne.
She was also preceded the dendritic cells have only whole-body
because Mrs. suffered from erysipelas, and many operations on the lymph nodes behind
had only been at her local hyperthermia applied in addition to dendritic cells.
Eef says: First I went into the tent that was keeping me out because I have a bone with few glands
in my stomach and my legs. I've often had erysipelas that is why it is done locally. I have many times
surgery and the last 2.5 years ago when I was here just one year and then I started again after a lung metastasis. So that's when
surgically removed again.
You are in a stdium you to know I am not better than than .... well if it stays., It now seems to be a little chronic.
I hope. Those cells that you do have it but if you remain in balance and therefore mhet IDET there, I have drugs there,
I try to eat well and live healthy. But then you have your mind is not always in your pocket. Sometimes your mind if something else is good.
Comment Text 7:
Treatments beat well. However, the Cologne travel each time a tall order, but the results pay much.
Teus says: We have been to Cologne, we walked all the way from the station, well that was just, first of course so many times a year
. But then we came back later as I think it was good. Not really a big change but of what is being done
and that was very nice.
Eef says: Yes, I find the change. That in the AVL if you have a tumor that is removed but the fact that nothing can be done
that's the worst when I was in Cologne, there is what to do, not everyone but some are still good years.
8 Comment Text:
Besides the treatments in Cologne will remain true to Mrs. van Deelen the Moerman diet. And she tries to live as healthy as possible.
eef says: Before I went to the doctor that I knew it was cancer, I immediately started Moerman. I come from nursing
I had also heard a lot about Moerman but never did, but then I thought immediately that I am going to do. Yes, and I try, so what
I try, I try to live I should say and sometimes it is better and other times it is worse. In summer than
are my legs a little better because I've always been very much trouble with that leg. So I have a lot of help with home care because I can not bend
and always with my leg up to, I sometimes feel like a dog, leg. But yes there are a lot of awfully good things that go
So I enjoy it while you can.
Comment Text 9:
After the last surgery in 2006, Ms. van Deelen remains free of new tumors. Subsequent scans show no new tumor formation.
And her blood counts are stable and within normal values. Mrs van Deelen now, in February 2010, three years clinical cancer.
For a stage 4 melanoma is quite unusual.
Eef says: I have had a scan and they do so in the van Leeuwenhoek, which is very nice. And that was good, blood was so good then you are
again reassured. So in that sense it is good.
Comment Text 10:
Although the result of the treatments in Cologne is well above expectations to Mrs van Deelen and her friend
not really believe that a definitive cure can be.
Teus says:
Yes I am still a bit conservative but I think it's a very good result and of course you think so your hopes that
has helped of course that is not to prove but it is very special. We got a map of the surgeon, the professor
So who is retired. We had sent him a card that she's alive and it's been so long ago. And then he wrote back now
that is very nice because then it might uitgewoekerd. Well I thought that was nice, it was great. And I say dude look what he
and writes that for someone who knows lots of melanoma.
Eef says, as he always said it when you're at stage 4 you will never be better but we can hold out for a while
he always said. Maybe he just said but I suddenly thought: it will not be true? ...
Teus says that if a man says he
Eef says that's very special, and now three years after that. At first I thought it was always something left
but sometimes you still hope of maybe it's ... well at least he is not there yet.
Is not it great to now go to Spain?
Comment Text 10:
More information about dendritic cell therapy, hyperthermia and guidelines for a healthy lifestyle
can be found on the websites of cancer-current and the Medical Center Cologne
