AML - Acute Myeloid Leukemia: A penetrating and moving diary of Ad and Marianne Amelsfoort-Brands. How they dealt with the message that Ad with AML (Acute Myeloid Leukemia) suffered. Now that summer 2011 is still doing well with Ad. Story Updated August 16, 2011
August 16, 2011: in 2001 I contacted Ad. His story moved me and the Brabants Dagblad years I followed him more or less. Now I am cancer-current to the review I have visited his site diary is still online to read but it was recently added to that was the 2007 report. I sent an email ad how he was happy and he replied almost immediately that it is still going well with him. Ad Who does not know his story read even following interview with him or visit his website diary http://wepsite.net/aml . A beautiful and honest account of what Ad and his wife and children and all have experienced an example for many people struggling with cancer.
dated October 22, 2001: Re wrote the following letter today in the Brabants Dagblad. I think this is a beautiful letter and for the further story of Ad go down this message to a deep link to its site.
22/10/2001
PATIENT HAS THE RIGHT TO OWN
When a cancer patient decides at its sole discretion and emotion
acting in his fight against the disease, he has every right to do so.
Even if he makes a choice that is inconsistent with what the average consumer
regular care as usual describes.
Recently, the famous actress Sylvia Millecam died from the effects of
breast cancer. Not only her age and her Famous Dutch citizenship
had led to the wave of emotions. Sylvia had the road to recovery
chosen the so-called alternative healers circuit. This
in the media widely reported personal choice induced emotions
went from sadness to anger, resigned to failure than anything else
mainstream medicine. I do not exhaustively discuss the similarities
and differences between the two "tracks" in health care. However, I
attention to the rights of (cancer) patient in general and
self-determination in particular. I do this based on
personal experiences, work experiences and beliefs and using
hundreds of responses I received following my
experience account of Acute Myeloid Leukemia (AML) on Internet
published.
If someone with a serious illness is diagnosed, it is
person (and everyone and everything around it) are often attacked by overwhelming
emotions. It is very conceivable that people decide
come to terms with the disaster that happened to them. By the medical
Specialist diagnosis is sometimes even approaching a final
end in. One may then decide to not fight in vain to per se
to live. The care than among other regular
care often still can be offered is palliative care.
Care aimed at combating symptoms, not cure.
But more often it is different. It has a plan, explains that
you, to accept and work to help you. However, it has been medicated
not always given to clarify the
perspective of the patient. This may be due to the fact that
not sure which treatment for the disease used to be.
How the treatment will strike. But also because the patient due
complications of the disease and its treatment too heavily taxed.
And there are obviously still some reasons to list. A whole
important reason may be that they simply in the dark, the
simply do not know. A physician is not omniscient, all-rounder and is not
now willing to be the first to indicate.
In general, however, one hears the diagnosis after the
any plan of the medical specialist could look like
see. Until that time the patient often been tense anticipation
what happened to him on the hand could be. If, however, review them
a certain image begins to form, even if only in the preliminary
his own head, is the personal opinion and the right to ownership
the patient play an important role. Particularly to certain diseases and
their relatives play a support and guidance to offer a large
patient group in England called the '10 rules of law
cancer patients' drawn. One is that the patient is entitled to have
a second opinion request, to refuse treatment or use
the so-called alternative treatments without affecting
continuation of the (regular) medical assistance. These rules are almost
universally applicable, at least in the Netherlands.
Data from the Dutch Cancer Society show that for certain
cancers the survival rate after five years less than 15 percent
is. For certain types of acute myeloid leukemia, for example, 12
percent. Pancreatic cancer: 7 percent. But once you realize what this
means. Clearly enough in any event the recognition that the
Regular called Healing is not a ready-made for each condition
solution at hand. When a (cancer) patient on that ground would
decide their own experience, insight and emotion, as you wish therefore
act, so he has every right in my opinion. If the choice
thereto in an appropriate therapy it from the multitude of things
The alternative circuit has to offer, you can. On such a choice fits
again, who trusted physician in the white suit with his often high regard
the citizen is really not a monopoly of wisdom. That is the
objective data from the Dutch Cancer Society fact sufficient
proven.
That therapists and their treatment also suggest that alternative circuit
Like conventional medicine practitioners to certain objective and
independent quality assurance must meet, is for me
beyond dispute. That, in practice not always the case. With
particularly in this area have always been those of ordinary imposters
The ignorance and uncertainty of patient abuse their choice. Self
I am not of the followers of the alternative circuit and I spent
The most critical period in my life so far a very good, very
expensive, but until now have proved reasonably effective
health care product should consume from the Regular
Healthcare Circuit. But, supported by personal experiences that I
of peers received, I can tell other people, much less
positive experience. Hence my plea for respectful and
dignified treatment of cancer patients, their partners and their immediate
neighbors if they have made a personal decision not sanctioned
with the average consumer of mainstream care as normal and good
describes.
Before the author of this article in 1997 was attacked by a very
severe form of leukemia, he worked for more than twenty years in various
areas within residential care.
Brabants Dagblad, Ad van Amelsfoort, October 22, 2001
A penetrating and moving diary of Ad and Marianne Amelsfoort-Brands. How they dealt with the message that Ad with AML (Acute Myeloid Leukemia) suffered.
Ad asked me one of the pictures accompanying stories about Charlie and the story of an old-fashioned family as an introduction to his diary to record. I have them both installed since they moved me in any case and very recognizable in everything that you can play as the message gets cancer. At the end of the two stories deep link to the site of Ad and Marianne.
A PICTURE OF CHARLIE
We advise people who long nursed in an isolation room should be a personal touch to their room to make. The room, as it were partly his own way to organize, to decorate.
That was us more than once given to understand when it became clear what a treat it was waiting for me.
Prolonged isolation and thus!
Feel free to bring home all kinds of things from something with the room to dress, if you want a musical instrument or a computer. However, plants and animals are expressly excluded! In that "animals" was still a little pain point. I would my wife and children, relatives and friends can visit regularly, of course, but my dog of course. My terms of stature or small, but otherwise still great companion I would very definitely going to miss me and he probably also a bit.
Charlie, our Havanese, felt my moods always subtly and often seemed to understand perfectly. He always kept me company, and as he in my neighborhood could be, then he was already good. That creature was always with me during difficult times.
No, if there is at least something from my room, three by three which would have to dress up and personalize should give, it was a nice picture of Charlie.
So besides a large poster of a sunset in the sea and some other frills that came with beautiful pictures of Charlie from home. And that was, except when the nightstand urgently needed for other purposes, the place of honor always on top of the nightstand and was always well in sight!
My computer at hand, that was also kind enough, then I had some of my hobbies to do.
But I bleeding due to leukemia, in my opinion was, prevented not only that I could read, do puzzles, etc. but also I could do something with that PC, so they stayed home.
The neighbor in the isolation room next to mine, was clearly audible, brought his keyboard and he could pursue his hobby so well. If you thought I could use a ondersteuninkje and when he himself was capable of, then played on demand or something for me. A request or through one of the nurses in the room with him ended.
Charlie and the music within sight of my neighbor who reached me through the wall yet again it was just a little more to save during some difficult periods.
One of the haematologists had a habit of, when he told me something bad to tell or before such an unpleasant act as a bone marrow biopsy to start, get a little something about my loyal watcher at the bedside to say or ask . He knew what he was beast "bets".
After one month long stay in hospital I was "just" go home to rest and gain strength in preparation for the final treatment: a very heavy chemotherapy and a stem cell transplant.
My good friend Charlie is no longer recognized me. Not only my looks, but especially my body odor was too big change. Only after I added the same emotions back home, sitting on the bed in the room was waiting for me, with my usual words of welcome addressed to Charlie, he recognized me. He hooted with delight, splashing the floor below and half had not left me save! He departed not from my side and growled even repeatedly to my wife when she wanted to penetrate between us. She had also missed me anyway!
My friend in the photo on the nightstand was still my friend!
JCM ad from Amelsfoort
AN OLD FASHIONED FAMILY
An old-fashioned, solid family firm. Since my parents had seen to that. Twelve children, five daughters and seven sons. Brought up in solidarity. And as the eldest of those sons was the leukemia had been so excited in my room for three by three. So I committed my isolation chamber of the AZR Dijkzigt location to call.
"Purely theoretically, the chance that a sibling of a suitable bone marrow donor for you 25%" had the haematologist said. And hopefully he added me so well be three or four, maybe more, suitable donors could have!
All six of my brothers had been given or taken time off from work, they would have all six, that was for sure. All six very willing to help wherever it could. Even today. They had all been talked about for an early trip, had been explaining the hematologists what the purpose of this research, and had all the necessary blood sample.
And now we were seven of together in my little room. One was a little pale and silently through the large window outside to stare, another tried the air, who was pregnant by an intense solidarity, complete with some boisterous talk about the crowds that they go on the road were encountered.
Seven sons in our family, as together, of which six had the firm intention of their eldest brother of the good material needs. Together they had each other in the past so many times and also helped the job done they would go together! Because together we are strong and we can manage it! I lay motionless in bed, was physically not too good at this emotional event, and now is again on top! But what really did me good to have use of my brothers to see. They all went their own way to, so all something different from each other, but the commitment, the goal was the same!
We got together when crying, but then also some laughter and drinking coffee. And when the six men had to leave again because I had to go through treatment programs.
"Well, then we go again, Ad. We hear it when we have to come back associated with donating bone marrow."
"Yeah, okay guys. Thanks so much for having me to help them all. Careful driving home eh. And do your wives and the kids greetings from me."
They're gone, I break and burst into tears. Is not much anyway. Except among my brothers, was also among my equally willing, helpful for me with no sisters suitable bone marrow. Sorry Mom and Dad, but there was not!
So it was nevertheless still a stem cell transplant.
Ad.JCM of Amelsfoort a.van.amelsfoort @ home.nl
The diary of Marianne Ad and that to this day is kept can be found at:
