And home rehabilitation
As you may have read, there were periods between courses through which I go home. There is also some times when I thought 'forever' home allowed. I always looked forward to the day when one of the redeeming words said 'you can now go home "for as a home period was always the necessary medication with and a number of restrictions (what you could not do / eat right call if you had fever, etc.). When I first went home (after cycle 1) I was very happy that it finally was. The day before had already mentioned that I should go home three mornings I was anxiously waiting on the doctors three times they had me because of low blood numbers disappoint. I could finally go home! Because I got the fever that Hickman was quite strong in some ways I did not feel good with myself and knew me no advice. I slept at night and poor sleep medication that I used gave me bad dreams. When in the hospital had removed the Hickman, I quickly snapped up and was home time what I had hoped. Fleur and I are currently or repealed by the parents of Fleur (Fleur has stayed with her parents during my periods in hospital). This construction had the advantage that we have a lot of support and warmth to each other. When I got home I was recovering from treatment two of the intensive care period. I was a very short walk, as the longer distances involved, I used a wheelchair. At home but continue to work on my recovery I started rehabilitation at a rehabilitation center in our neighborhood. In this rehabilitation center I found a physiotherapist who took plenty of time for me and immersed himself in what I had experienced (both on the emotional level as well as some medical facts). Fortunately, this man earlier in his career also worked in a hospital and experience with people who had lain in intensive care. Together we then determined what my goal was (the weather condition and sufficient strength to independently again walk / work in and around the house) Apart from the fact that personally I think we could get along, we wanted both to work hard our common objective. For me it was a nice idea that he clearly explained everything in advance and during training I checked several times (eg heart rate, oxygen uptake, as a result of resuscitation in the intensive care unit was a comforting thought). He has a special program for me so we were able to periodically determine where we came from and what the progression was. This allowed us to develop structurally and fundamentally. I have several times between both treatments and the periods by which I had resigned with him been at work to regain strength. I'm looking back at these times that I was glad I decided to rehabilitate at home and am very grateful for his contribution. Rehabilitation of the stem cell was very hard even though we were glad we were home again, this time very heavy, which was caused partly by persistent nausea / vomiting (in very severe forms), urinary tract infection (because my resistance was low and should remain low due to Graft versus host got no antibiotics. What symptoms long aanbleven urination terribly hurt) and fatigue. Every day was heavy and the symptoms have lasted about three months (after a while took some complaints over time something off). Just when the weather was better a bone marrow biopsy showed that once again there was a relapse (for more info 'The first relapse in June 2004')
