Current status: October 2005 (including second opinion report)
Current status in October 2005 (including second opinion report)October is for me and Fleur had a tough month. We have bad news messages and fortunately with perspective. As the chapter describes current status in September 2005, we would hear from the hospital or the maintenance (consisting of the drug 6MP and MTX) had achieved satisfactory results. This assessment (using a bone marrow biopsy) was in the hospital, at this meeting were the hematologist, Fleur and I attended. The hematologist started with the announcement that the treatment based on bone marrow examination is unfortunately not the desired result was achieved. Although there was a reduction in the number of blasts (immature white blood cells) but this was not enough for further treatment. We asked directly measured the number of blasts was now, the hematologist said that between 25 and 50%. In the chapter the second relapse in April 2005 stated that the first number of blasts was 73%. In our view this was a considerable reduction, then we have also asked what would happen if we the medicine of the hospital (MTX and 6MP) would continue to continue the combination of orthomolecular medicine physician. The hematologist said that this option was discussed in team meeting and that no salvation in it. Also we were told that the medication prescribed by orthomolecular doctor anyway not been recognized by the hospital. The hematologist I have offered the book to nutritional intervention in cancer of Valstar once read. Thereby making the comment that this may not benefit under the guise than harm it could not sail and you and your future patients will benefit. My suggestion was flatly rejected. This observation on my part was not meant to its position 100% change, however, more to perhaps understanding to create between the regular care and the orthomolecular approach (this would be my view, eventually may lead to a treatment using the best that both methods provide have). Also we were told that any blood transfusions (which is given as certain blood values resulting from the disease are low) were welcome in the hospital. The hematologist told me she could do nothing else and that we should enjoy the time I would still remains. If complications were to occur we would first turn to their GP. The doctor could possibly send me if it was suspected that a blood transfusion would be necessary. The hematologist told me that I also had to stop the drug 6MP and MTX (the other medications I use for example the suppression of infection) could still be continued. Despite think we had a good relationship with the hematologist and the hematologist in the interview also showed that it was difficult message we left somewhat disillusioned with the hospital. In the car on the way home we tried us to regroup and said to each other that we incomprehensible found that "the hospital team no good saw the continuation of 6MP and MTX (this was no one in our immediate environment including ). Then we said to each other that we hoped would provide the second opinion thing. Luckily we had two days after this notice an appointment with the orthomolecular doctor (this man is still important for us he has given us very useful advice in addition to medication provided). During our appointment, he has given us the feeling that it certainly is not over (although he never empty promises and / or predictions). Since we also intended to keep militant was very pleasant for us to hear that there was someone who wanted to keep looking for solutions. Fleur and I have at this time in consultation with a number of people and decided on their own feelings despite the advice of the haematologist medication (6MP and MTX) to continue. We wanted to know what the result would be if we continued to receive medication in combination with the hospital of orthomolecular medicine doctor and the hospital team as I had "given" in our opinion we had little to lose. The second opinion appointment for our strange and new hospital with a new professor was exciting. Of course we hoped that this hospital could offer more opportunities. It was a pleasant conversation in which we unfortunately heard that according to the treatments that were already given and the results they did try to find solutions. This professor proved to be more humane and indicated that a physician or to the patient and the patient will think certainly will notify if there are any new treatments emerge. He foundvery strange that I was in the hospital where I normally did so had treated. Of course he is not too critical of his colleagues, he noted however that this view is not usual. He also said that the hospital where he worked the casualty at all times will continue to see and support the medication (MTX and 6MP) would continue. The goal is the situation for as long as possible to keep good time and possibly earn a profit. This time savings also how small the probability may be sufficient to ensure new treatments. He suggested that contact with hematologists from the hospital where I normally come to show me that they certainly should continue to support and medication. We have an appointment shortly afterwards with another hematologist (the haematologist who told us the bad news was on leave for personal reasons) in our hospital fixed. We have shown that first conversation that we were not happy with the way some things were communicated. Since this was a colleague, we do not talk too long because we want to focus on the future and do not want to be responsible for negative things. On the advice of orthomolecular doctors we have in this conversation indicated that I would actually like one another bone marrow examination would. We also indicated that when I keep using 6MP and MTX was based on their own feelings. The haematologist was not a problem, and one week later the bone marrow biopsy performed. Unlike the two times before the puncture went smoothly this time (ie the 'sucking' of the necessary equipment was at a time and relatively painless). If a puncture is difficult, may be due to poor condition of the bone marrow (which is actually the blood of the plant body). Of course, no consequences are attached to the reduced material was examined in the laboratory. We had the hematologist agreed that we would call one week later, informed of the outcome. The day after the hematologist called with very surprising news the number of blasts (immature white blood cells) had fallen to 3% (six weeks before, this is still between 25 and 50%). The haematologist said the success to the 6MP and MTX (the haematologist called it an expected result). Immediately I was asked why it initially in consultation team had decided that this medication had to be stopped? Here we received no satisfactory answer. But we were very happy with this result because this might be a possible further treatment (with percentage of blasts is that this is possible). The hematologist told a number of days to wait for complete results. If there is sufficient immune cells from my bone marrow stem cell donor would sit in my new one would DLI (donor lymphocyte injection) may take place. A week later we was in a personal interview at the hospital told that this is indeed possible. Furthermore, the hematologist also told that the reduction in the number of blasts was not entirely the result of the 6MP and MTX. We suspect they believe that the DLI, I've got months ago, yet effective. In our observation that the diet followed by me and the medication of orthomolecular doctor in our view certainly helped was different answer. We are now awaiting the DLI is likely that the second half of November 2005. Fleur and I feel well at the moment and we are waiting for things to come. Although it is not scientifically prove it is indisputable that for me since the moment I've started with the diet and additional medication for my feeling a rising trend can be observed. I believe that not only can be observed in the improved blood tests but also mentally and physically. So the combination of regular care and orthomolecular medicine suits me well so far. Although 3% blasts actually complete remission content remains the fear that the disease course are again rearing its head so we hope the good will DLIexpired.
