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Lung cancer: non-small-celled: lifetime story Chris

23 May 2011 Chris is quietly asleep last Friday morning after pneumonia no longer was under control, so let me know Tilly. The last days is Chris with morphine as good as sleeping to let him suffer as little as possible held. He is also very calmly asleep Tilly told me. Very sad that Chris has not saved it anyway after they have done so much sure.

7 January 2011:

Again leave a new scan shows that there are no new tumors in the head with his come and situation seems stable. Good news for Chris.

november 19, 2010: Chris and Tilly let me know that they got a good result last week again. A scan shows that the tumors have become smaller and no new again with his come. It remains so well go with Chris and also their accompanying doctor was very satisfied.

30 september 2010: video is put online again and to view on: Video-lung cancer-Chris

2 1/2 years ago got Chris diagnosing non-small lung cancer cellige. He was initially treated with chemo and trade name Avastin. This worked well at first but soon there arose again in such a degree that there is progression and metastasis in the main heavy also arose. April 2009 is Chris to Robert Gorter in the medical centre Cologne gone and read below what happened when all with Chris. A few weeks ago, Chris had a Gamma Knife treatment. Currently enjoying them a well-deserved vacation in southern France.

Title:
Chris survives two years in both lungs
metastatic non-small-head and cellige lung cancer

Tilly says::
He was what moeier, but Yes if you work 60 to 70 hours a week and he was what parent, yes actually there I stood
not so with quiet and that it was only because he was never actually sick. Never been sick. He never nothing was wrong with me.
Work, work, work.
Hj has never 1 cigarette smoked. Never. I am a smoker. This is why I think it is not fair.

Chris says:
Mid-June last year, I had pain on my chest and exactly opposite on the back of my back. Then I went to the family doctor.
Then said that, I never see you otherwise. You never actually comes to me so we will just send you to the hospital and
a long photo. Well then I went to the hospital, a long photo created and started working again.
I see, I hear it though.
Well when we went to the family doctor in the afternoon and then he told that there was a stain found on the lungs.

VO: 1
Should be looked at through a surgery here or indeed to lung cancer.

Chris says:
When we got there after 5 days the outcome of and then he said first that it is not of Yes we thought was lung cancer but
It is the though and it is stage IV. I say what does that mean? That means he says that you are a primary tumor in the left lung
with metastases in both the lungs. That means that we can't operate and also do not irradiate.
The only thing we can is chemo to stretch.

Tilly says:
My hair stand straight up and went for my feeling as I would think than I shoot yet well vol.
I think well it's past. Everyone knows that that lung cancer, yes then you've not long more.

Chris says:
And well I say, how long I have this already? Well he says no longer than half a year and how long I've well yet? 5 years? 10 years?
Well he says 5 years I think, ambitious.

VO: 2
The oncologist proposes to start directly with Gemcitabine plus Cisplatin chemotherapy, and trade name Avastin, an angiogenesis inhibitor.

Chris says:
A combination of that trade name Avastin with chemotherapy; that would be great

Tilly says:
He's begun there but we also saw what chemo with a human does. And that's not much good bodily. Because
is tackled not only cancer but all good tissue is also affected.

Chris says:
The first two chemotherapies that went though. Since I had not so very much bothered and I thought where people have
talking about that is it so annoying. But number 3 and 4 yes then I have known since I was really sick and
nauseous. No appetite, just nowhere sentence in. And Yes you are just completely demolished.

VO: 3
Although Chris the chemo as a huge tax by the side effects, it is experiencing has a positive outcome.
The tumors significantly.

Tilly says:
He responded very well to the chemo because 50% of the tumors was there after 4 treatments. but we had something
We want everything away.

VO: 4
At the end of november 2008 Chris Gets the last chemo treatment, but because the tumors haven't quite disappeared
they go through the internet looking for alternatives. Their son who helps everywhere in their encounters at DCA.

Chris says:
DCA I used from november to March. That is a mild sedative that comes from America. There, I had good stories
heard of a Belgian who has been in the newspapers in Belgium. Who were there and who had two emt
much benefit from it. And I felt very very good. We have been on holiday in March winter sprat command-line shell directly. I've skied of
avondslaat and none to the early morning to dusk's hand. Let's say my fitness was just good and I think can
just better if we get in March that scan. Well when we got that scan in March and a few days later
the rash, a week later. And when the doctor said: it is not good. It is grown.

Tilly says:
I thought this is the end. The tumor was back on the old level. I think what nou. I was completely panicked.

VO: 5
Later, Chris and Tillie to hear that the patients who used DCA
also treatments with chemotherapy and/or radiation.
That might explain why DCA at Chris has not helped.
The oncologist proposes to start directly with a new experimental chemo
but Chris let a new scan first making his head and belly.

Chris says:
Admitted to be then I would first have to let a brain scan and make a scan of the abdomen
and if there was something to see in the brain I would not participate in that study.
Well when that scan showed that there were so so yes in my brain when I was allowed also metastases do not participate.

VO: 6
So again a chemotherapy follow is no longer an option. The prognosis is extremely poor.
Chris Gets a palliative treatment no longer proposed meaning that of healing can be.
The oncologist proposes to the tumors in his head with the Gamma Knife irradiation.
Nothing more can be done to the lung tumors.
Chris accepts the Gamma Knife irradiation but tells his oncologist that he Furthermore wants to do a consult abroad.

Chris says:
I had meanwhile my information sent to China, because in China they do all kinds of therapies. And I voted against the lung doctor said
I'm also going to look at Dr. Gorter in Cologne. And he said and I say because the teon tja faster restores of the cancer chemo
than I do. Because I'm still not good, I feel quite nice of that chemo and the tumor is neit
back on the old level.
And a following chemo says he does less than the first. I say I want to have it off, nothing on there I shoot.
Then he says Yes I should give your partly right in there. The second line behandelinge who are generally less.

Tilly says:
I thought no, we already have but we must just try everything. Ready.

VO: 7
Their son has them also stressed the Cologne where Dr. Robert Gorter Medical Center among other terminal cancer patients
dendritic cell therapy can successfully treat and still sometimes with hyperthermia.
This speaks to Chris and Tillie and middle april 2009 they go to Cologne for a consultation.

Chris says:
Dr. Gorter has actually given us a private college as he himself says. What happens with the very clearly explained
dendritic cells, how that works. And I thought it was from the outset a logical story.

Tilly says:
We then said yes against each other than nature heals around his own if it works like it should work.
And that attracted us so.

Robert says:
Our public secret is that we make a combination of a vaccination with dendritic cells and a form of hyperthermia.
And if possible also a fever treatment on the day of vaccination with dendritic cells and what we do in the infusion.
We also do immuunrestuaratie always. We try the immune system, the function of the killer-cells and other immuunfuncties
to improve., eg. also from the thymus or the thymus. And it is this approach that iki faith some things that every man for himself
work that we combine. Because I think hyperthermia in itself, no one doubts it, works. Dendritic cells and I
still think nobody doubts, that work. But if I then bring together wrodt 1 + 1 not 2 but 1 + 1, say 4.
I think if you are a form of hyperthermia combined with dendritic cells plus what does that to you immuunrestauratie
a patient gives opportunities that the immune system very much more than the weather.

Chris says:
I immediately said, well off and let those cells but tap but blood growing and we have been here we have the 22nd and april 30, 2009
When I received the first time those cells. Hyperthermia for the 23rd time I well. So would the 24 treatments are so
Monday would be the last.
I

VO: 8
Chris gets over a period of 6 months 6 times dendritic cells
and 24 times hyperthermia. Treat is already after 2 months on 2 July 2009
in Tilburg an already scheduled scan made from his lungs and brain.
They prove positive news because the tumor markers expectations in a few months
time returned to normal values.

Tilly says:
A week before we got the scan I felt not at all good. I was huiligere and zenuwachtigere by the day and I think
I don't want any bad message more. Oja, we had called for all certainty here tumor markers prick before he had had and let 1 cell
After 2 celbehandelingen. And that creature that had gone down a lot. It was the first time 29.9 the value
While only 16.3. And after the 2 celbehandelingen was the 9. And that is actually a normal value.

Chris says:
Dr. Gorter said if that tumor markers so gigantic down have gone from 29.9 to 9, that is 70% less. He said that is gigantic,
that should be on that scan to see. There can only be improved. It cannot be that which, for one reason or another
or whatever that would be grown. That is almost not possible.

VO: 9
The scan confirms the decrease of the tumor markers.
The tumors are significantly shrunk.

Tilly says:
It is well just over 2 weeks ago that we have gotten the rash that the tumor is to take off. There are still small
lime spots in. And the metastases are narrowed and that gives the citizen courage.
The lung doctor was genuinely happy. He said that I find so particularly what is happening here. I think that is so remarkable.
And I must say, that I haven't had the whole year but now I have hope again.

VO: 10
It goes well with Chris until he gets in August 2009 when an epileptic attack.
Around the genecrotiseerde tumors in his head has edema formed.
Chris has a great impact on the epileptic attack.

Chris says:
Going by that epileptic attack a few weeks everything less, certainly the first weeks. Things that I just forgot.
I've definitely had a week left, at that, who don't actually competed. We are far too soon gone on vacation
afterwards we said. We are already after a week went terugekomen because it's not. Because then I did my right slipper to go swimming,
I did my right slipper out and my linkerslipper I loved and so I ran to the pool with 1 slipper in, So those things,
I had not by that there was still some on the left also.
Probably of the metastases in my head of the 6 there are two road. There are therefore still about 4. And of those 4, there are 2 necrotic
so that his death according to Dr. Gorter. But on the scan you can see that there is still fluid around it, is oedeeem. and that edema can plot,
be even greater and that has pressed against my brain. and that has as far as I know and understood the epileptic attack
caused. This is why I already half a year should not ride.  You'll get no disqualifications actually and then another for that time
EEC movie be made I believe. They then can see if I can drive again. So I may not also now not driving and motorcycling.
And that seems to me not too wisely.
I have been through dr Gorter had still 10 days or 2 times dexamexthason, 1 mg. 1 mg. and that is then again past since last Thursday I believe.
And now I have nothing anymore earlier, depachilitino only.
Now I have another scan in Tilburg at the end of this month. Then they can see if anything happened in the head. A scan of my lungs I get not yet
that we wait. I must still make an appointment with the doctor about, but he doesn't want to do that so if earlier in december around Christmas.

VO: 11
Also the lung doctor confirms in a letter to Dr. Gorter
that there is stable disease and that it goes well with Chris.

Chris says:
Well he has himself sent a letter to Dr. Gorter and therein he writes that it is very also goes well with me, so no reason to
complaining sure because there are 2 way that 6 metastases weather.

VO: 12
The scan of december 2009 is excellent.
There are again 2 "metastasis" disappeared.
And the remaining 2 of the original 6 tumors are again narrowed.

Chris says:
The situation is well good. I have had a scan again last Wednesday in the Elisabeth hospital in Tilburg. And that 2 of the 6 that were still there which metastases
are again become less.

Tilly says:
Who Tilkburg who also said if the doctor in the head goes well then it goes into the lungs also good. Because there is still neit scanned at the lungs.
But if he says it on 1 spot goes well then it goes well anywhere. He said they can all say me what they want but the few patients of Gorter
that I have who are under treatment with him that is also very good and I thought that was very nice to hear.

Chris says:
I notice that I'm sick but I can't say that it goes well. I do now 2 times per week and I am in such a sprat fitnesssen trainer.
And the last time was that 21 minutes continue. And Yes for someone with lung cancer is that not wrong I think.

Tilly says:
The doctor of the week in Tilburg who told us about that tumors in his head. Well for me it would be allowed to stay as the rest of your life.
I said well I uithebben Hey everything wiol. But yes because Chris has no complaints. And also if you look well or of the summer. Of the summer he was tired.
And now I find him just, well I would almost want to put the stempeltje on of curing, so good that he feels.

VO: 13
That hope of Tilly Gets a damper a few months later. Although they have been few weeks at winter sports holiday
and Chris has skied without physical complaints can be seen from a full scan yet again from 1 February 2010 that there is progression.
Also Dr. Gorter is therefore surprised ...

Robert says:
He was in december early January on ski holiday. He has extended his vacation, he even was in Switzerland or Austria. It went him very very good.
He comes back in January 2010 for a follow up scan and when it appeared to my surprise that there was progression of tumors
in the lung and in the brain. That was just a bit bigger and also since these 2 new genetics spots were to see.
And I also had really expected well he is also someone where we can all get away somewhere and yet there is progression again arise. But interesting is
He has nothing of that clinical noticed. And that is only on a scan.

VO 14:
In consultation with the oncologist Dr. Gorter to Netherlands in sets instead of irradiating and chemo as in Netherlands is proposed
Chris first several weeks to treat with the Newcastle Disease Virus.

Robert says:
The Newcastle Disease Virus is a virus oncolytisch. a virus what is absolutely not pathogenic to mammals, except for
cancer cells that have a special escape mechanism. A camouflage system to make themselves less visible for the immuunssyteem.
These cells can be very specific with the Newcastle Disease Virus and geinfecteeerd go beyond death. What we call apoptosis,
cell death within three days.
We give that intravenously and also if there are zaosl at Chris and tumors in the lungs that inhalation with a nebulizer, let's a nebuliser.
And 1 in 10 have very slight flu like feelings but if they measure their temperature there is only rarely temperature increase and that's after
always a few hours away again. So therefore do we like in the first two wken before production of antibodies come can well underway
that we give every day than cancer cells as possible in any case to bombard with that virus.

Eloy says:
Chris will get now intravenous 8 ml. and the rest I will give tthrough the inhalation. All right!

VO 15:
Because the Newcastle Disease Virus the first weeks should be given every day is usually the GP enabled.

Robert says:
If 2 weeks Newcastle Disease should be given intravenously we call often help from a cooperating doctor
in the country of origin of the patient. That is often a family doctor. And we rarely have that huisars not participate. We often bring a small
cannule to what you can let it sit for three days and three days can the family doctor or the nurse darna that also give.
And Let's also do the pateint inhalation. We instruct the patient and that is also very simple, never gives problems and can therefore always home
or in a different setting than be given here.

Chris says:
The very first time I got it I came home and on the road nowhere had and we were well and truly burden of home and I come in and I get the cold.
And I say well I go to bed. And really shaken and tremble from the cold. When I certainly have an hour and a half in bed, duvet over it, that was such a plaid.
Still a duvet and Tilly is with me in bed lying to try to get me warm come. Approximately an hour and a half after it was shaken over and then I got fever.
That lasted quite a while, some heft days that I had fever, every time such a substantial 38, 39 and everything. And that was actually every time
If I got a little less like.

Chris says:
At the moment, it is not meaningful to dendritic cells now he says to do. We must view them afterwards. Still 4 times that virus and hyperthermia.
And I've had the last time the cells in late February and well still 4 times and then we are in May and I think it might be useful to do cells again.

VO 16:
Newcastle Disease is always preceded the dendritic cells and not simultaneously.

VO 17:
A scan of the head april 2010 shows hope. There is talk of stable disease.

Chris says:
Well I have the scan of my head last Wednesday and had the rash and who was also immediately stable relative to the scan of January.
28 January I had the last scan. And Friday I get the results of the scan that they have done last Friday.

VO 18: and also scan of the lungs shows no progression and stable disease.

Robert says:
There is now a scan made of him and again recently with tumors in the brain, no new jobs have been created.
Even a first indication that also better, that there is regression of the tumors. And that everything was in the lungs to original tumor
with metastases that everything is very stable, metastases and that no further enlargement, but at least a stable process. It also goes well with Chris and clinically.
And if you see him so wouldn't you say that there is something going on with him in the first place.
And I believe you can say that the Newcastle Disease Virus can be also an alternative for chemo.

VO19
Chris is exactly 1 year under treatment in the Medical Center Keuilen. The last year was his quality of life seen
his illness is excellent. Or Chris eventually will overcome his lung cancer is uncertain but certainly there is still hope.

Chris says:
I'm going to therapy twice a week and then I do so what sports. Since I have that virus is my condition somewhat less and can I also what less.
But normally, I am used to it and the last time I drove over 30 minutes on such a cross trainer so that is very good.

VO 20:
The approach with the Newcastle disease virus has ultimately not for a total remission ensured ... Struggling in the middle of July
Chris still with uitzaaingen in the head and there is both in the lungs as in the main question of slight progression. Yet
Chris Tilly his physical condition is still good and the courage not to give and Chris.
Chris is already 2 years with metastatic lung cancer and with excellent quality of life.

Vo: 21::
More information on dendritic cell therapy and hyperthermia can be found on the websites of cancer-topical. en and the medical centre Cologne.