Experience stories of cancer patients how to live with cancer and / or survival.
This site has evolved from the experiences of three of us. Anthony (see Antoine medical records ), Shifra and her parents (see Shifra medical record ) and Kees (See Kees medical records ). But we are convinced that many other people with similar stories and experiences. On this page, we want stories consultation and contact with the sender. So you can tell your story, but we at least know where the story is based. You should contact the editor .
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Story lung cancer experience: Chris is Friday, May 20, 2011 passed away after a long battle against metastatic lung cancer. Article updated May 23, 2011
May 23, 2011 Chris was last Friday morning to sleep in peace after a pneumonia out of control was to bring, so let me know Tilly. The last few days with Chris morphine virtually dormant kept him minimize the suffering. He's also very quiet to sleep Tilly told me. Very sad that Chris was not saved after they have done so much before.
January 7, 2011:
Once again, a new scan shows that there is no new tumors in the head came and situation seems stable. Good news for Chris.
November 19, 2010: Chris Tilly and let me know they got another good result last week. A scan showed that the tumors became smaller again and no new ones have come. It remains well with Chris and their accompanying doctor was very pleased.
September 30, 2010: Video has once again put online and can be viewed at: Video-lung-Chris
2 1 / 2 years ago Chris was diagnosed with non-small-cell lung cancer . Initially he was treated with chemotherapy and Avastin. Initially this worked well but soon came again, and progress in such a violent degree that there are metastases in the head emerged. April 2009 Chris to Robert Gorter in the Medical Center Cologne went and read all below what was happened with Chris. A few weeks ago, Chris had a Gamma Knife treatment. Right now they enjoy a well deserved holiday in southern France.
Title:
Chris has survived two years in both lungs
Head and metastatic non-small-cell lung cancer
Tilly says:
He was what moeier, but yes if you are 60 to 70 hours per week and he was older, so there I was actually
not thought much about it and that was the only because he was never sick. Never been sick. He never did anything wrong.
Work, work, work.
Hj has never smoked a cigarette. Never. I am a smoker. Therefore I think it is not fair this.
Chris says:
Mid June last year I had pain in my chest and just across the back of my spine. Then I went to the doctor.
Then said that, I never see you differently. You never come to me so then we will just send to the hospital and
a chest x-ray made. Well, when I went to the hospital, a chest X-ray taken and return to work.
I see, I hear it.
Well, when we are in the afternoon went to the doctor and he told that there was a stain found on the lungs.
BB: 1
Through keyhole surgery should be considered whether this is indeed cancer.
Chris says:
When we got there after 5 days of the rash and he said yes, we first thought it was not lung cancer but
it is and it is stage IV. I say what does that mean? That means, he says that a primary tumor in the left lung
have with metastases in both lungs. That means we can not operate nor radiation.
All we can do is to stretch chemotherapy.
Tilly says:
My hairs were standing straight up in my mind and if I still think I shoot it full.
I think now it's over. Everyone knows that lung cancer, so that you do not have long.
Chris says:
And now I say, how long have I been? Now he says no more than half years How long did I have? 5 years? 10 years?
Now he says five years I find too ambitious.
VO: 2
The oncologist proposes to begin immediately with chemo, cisplatin and gemcitabine plus Avastin, an angiogenesis inhibitor.
Chris says:
A combination of chemotherapy with Avastin, which would be something great
Tilly says:
He's started but we also saw what a man does with chemotherapy. And that's not much good physically. Because
not only the cancer is being addressed but all good tissue is also affected.
Chris says:
The first two cycles of chemotherapy that did go. I had not much affected and I think that people have
talking about it so annoying. But number 3 and 4, so then I knew it because I was really sick and
nauseous. No appetite, just nothing fancy. And yes you are just completely demolished.
BB: 3
Chris Although the chemo like a huge burden experienced by the side, this is a positive result.
The tumors shrink significantly.
Tilly says:
He responded very well to the chemo, because 50% of the tumors was after 4 cycles off. but we had something
we want of everything.
BB: 4
Late November 2008 Chris gets the last chemotherapy, but because the tumor has not completely disappeared
go over the Internet looking for alternatives. It meets their son who helps everywhere at DCA.
Chris says:
From November to March, I have used DCA. This is a remedy that comes from America. I had good stories
heard of a Belgian who in Belgium has been in the papers. They were two of EMT and that there had
much benefit. And I felt very good. We still winter in March izjn sprat holiday. I've skied in
Early in the morning till late at night and nothing wrong. My condition was good just say and I think can
only improve if we get in March that scan. Well when we got to scan in March and a few days later
the result, one week later. And then the doctor said it's not good. It's grown back.
Tilly says:
I think this is the end. The tumor was back to the old level. I think that now. I totally panicked.
BB: 5
Later, Chris and Tillie told that the patients who used DCA
Also while treatments with chemotherapy and / or radiation received.
That might explain why DCA did not help with Chris.
The oncologist suggests immediately with a new experimental chemo to begin,
Chris but you must do first to make a new scan of his head and abdomen.
Chris says:
To be accepted I would first have to make a brain scan and a scan of the abdomen
and if the brains to see something, I would not be invited to participate in the study.
Well, when the scan showed that my brains were so well spread so yes, when I could not participate.
BB: 6
Again following chemotherapy is no longer an option. The prognosis is extremely poor.
Chris gets a palliative treatment is suggested which means no healing anymore.
The oncologist suggests that the tumors in his brain irradiation with the Gamma Knife.
At the lung cancer can be nothing done.
Chris accepts the Gamma Knife radiation oncologist tells his but that he also wants to do a consultation abroad.
Chris says:
Meanwhile I had sent my information to China, because in China they do all kinds of therapies. And I said to the pulmonologist
I'm also looking at Cologne Dr. Gorter. Teon and he said yeah, and I say, because the cancer recover more quickly from chemotherapy
than me. Because I'm still not good, I feel quite good Neit of the chemo and the tumor is
back to the old level.
And another says he does chemotherapy less than the first. I say I want to have it away, because I have nothing to shoot.
He'll say yes because you are partly right in meot I give. The second-line treatments that have been generally less.
Tilly says:
I thought no, we already have but we just have to try everything. Ready.
BB: 7
Their son has them also pointed to the Medical Center where Dr. Cologne. Robert Gorter, including terminal cancer patients
sometimes successfully treated with dendritic cell therapy and hyperthermia.
This speaks well for Chris and Tillie and mid April 2009 they will go to Cologne for a consultation.
Chris says:
Dr. Gorter has really left us a private lecture given as he says. Explained very clearly what happens to those
dendritic cells, how it works. And I loved it from the beginning to a logical story.
Tilly says:
When we said yes to the three of us together than nature's own healing if that will work like it should work.
And that attracted us so much.
Robert says:
Our public secret is that we make a combination of vaccination with dendritic cells and a form of hyperthermia.
And if possible a fever treatment on the day of vaccination with dendritic cells and what we do in the infusion.
We always immuunrestuaratie. We try the immune system, the function of killer cells and other immune functions
improvement., eg also of the thymus or the thymus. Iki and believe it is this approach that a number of things each of which
work that we combine. Because I think hyperthermia in itself, no doubt it works. Dendritic cells and I
think no one doubts this, that work. But if I put it together wrodt 1 + 1 not 2 but 1 + 1 say 4.
I think if you combine with a form of hyperthermia plus dendritic cells to immune restoration that does what you mean
a patient gives a lot more chances that the immune system can handle it again.
Chris says:
I immediately said, well, drain it and allow blood cells but that we cultivate the 22nd and we have been here 30 April 2009
I was the first time that cells received. Hyperthermia did I for the 23rd time. So it would be so 24 treatments
Monday was the last time.
I
BB: 8
Chris gets 6 months over a period of 6 times dendritic cells
24 times and hyperthermia. 2 months after treatment on July 2, 2009
Tilburg already planned a scan of his lungs and brains.
They expected good news because the tumor markers appear in a few months
time to have returned to normal.
Tilly says:
A week before we got the scan I was not good. I was nervous the day and huiligere and I think
I do not want more bad news. Oh, we did have to be sure this tumor markers to prick before he had a cell and
Cellular Treatment & Oxygenation after 2. And that showed that had gone down awfully. It was the first time the value 29.9
while it might be 16.3. And after 2 Cellular Treatment & Oxygenation was 9. And that's a normal value.
Chris says:
Dr. Gorter said, as massive as tumor markers have decreased from 29.9 to 9, which is 70% less. He said it is huge,
that must be seen in this scan. There can only be improved,. It can not be that for some reason
or whatever that would be grown. That is almost impossible.
BB: 9
The scan confirmed the decrease in tumor markers.
The tumors are considerably reduced.
Tilly says:
It is now just over two weeks since we have the result that the tumor had to carry. There are still small
places in lime. And the metastases are smaller and that gives the civil courage.
The pulmonologist was genuinely happy. He said that I find so special is happening here. I find so remarkable.
And I must say that I have not had all year but now I hope.
BB: 10
Chris is doing well until August 2009 when an epileptic seizure.
Genecrotiseerde around the tumor in his head has formed edema.
The seizure has a major impact on Chris.
Chris says:
By which seizures are a number of weeks less everything, especially the first week speak. Things that I simply forgot.
I certainly had one week, left entirely to that which actually did not participate. We are too early on vacation
afterwards we said. We are already one week after coming back because it was not. Because then I did my right slipper out to go swimming,
I did my right and my left sandal slipper, I held on and with a slipper so I went to the pool, way of these things,
I did not notice there on the left also some Sat
Probably the metastases in my head 6, two away. So there are still about 4. And of those 4 are two necrotic
So that his death according to Dr. Gorter. But on the scan you can see that there is water around it, oedeeem. and edema that can expand,
even larger and that has pressed against my brain. and that's all I know and have understood the seizure
causes. So I already half years should not ride. Get driving really no need for that time and then again a
EEC movie made me think. Then they can see if I can drive it again. So I can not drive now and not riding.
And it seems to me unwise.
I have 10 days from Dr. Gorter dexamexthason had 1 mg. 1 mg or 2 times. which is then passed since last Thursday I believe.
And now I have nothing before, just depachilitino.
Now I end this month in Tilburg another scan. They can see if something happens in the head. A scan of my lungs I do not yet
that we agreed to wait. I must have an appointment with the doctor about it, but he would not rather like around Christmas do so in December.
BB: 11
The pulmonologist confirmed in a letter to Dr. Gorter
the existence of stable disease and that it goes well with Chris.
Chris says:
Now he has himself sent a letter to Dr. Gorter and there he also writes that it's going well with me, so no reason to
complain especially because of the 6 metastases gone back 2.
BB: 12
The scan of December 2009 is excellent.
There are again two "metastases" disappeared.
And the remaining two of the original six tumors have shrunk again.
Chris says:
The situation is now good. Last Wednesday I had another scan the Elisabeth Hospital in Tilburg. And that two of the six metastases that were there that
have again diminished.
Tilly says:
That doctor also said that Tilkburg as in the main, it goes well in the lungs well. Because there is Neit scanned on the lungs.
But if it goes well in a place he says it is all good. He told me all they can say what they want Gorter but few patients
I have here with him in treatment that is also very good with that and I found it very nice to hear.
Chris says:
I find I am sick I can not say but that it goes well. I now 2 times a week and then I fitnesssen sprat on a trainer.
And the last time was 21 minutes continuously. And so for someone with lung cancer is not wrong I think.
Tilly says:
The doctor of the week in Tilburg who told us about the tumors in his head. Well for me it would be if the rest of your life may continue.
Well I said everything I wiol uithebben huh. But then, because Chris has no complaints. And if you're watching or the summer. He was tired of the summer.
And now I find it just, well, I would be almost like putting the stamp on healing so well that he feels.
BB: 13
That hope Tilly gets a setback a few months later. Though still several weeks have been on winter
Chris and plenty of skiing without physical symptoms, according to a scan of February 1, 2010 that there is progress again.
Dr. Gorter is therefore also surprised ..
Robert says:
He was skiing in December, early January. He even extended his vacation, he was in Switzerland or Austria. Fared very well.
He returns in 2010 of January for a follow-up scan and then turned again to my surprise there was progression of tumors
in the lung and in the brains. That since it was little more innovative and unique nutrient and two spots were visible.
And I had really expected now he is also someone we can all get away and yet is there any progression occur again. But interesting
clinically he has not noticed. And that's only one scan.
VO 14:
In consultation with the oncologist Dr. Gorter in the Netherlands, that instead of radiation and chemotherapy as in the Netherlands proposed
Chris first several weeks to deal with Newcastle disease virus.
Robert says:
Newcastle disease virus is an oncolytic virus. definitely not a virus that is pathogenic to humans and mammals, except for
cancer cells under a special escape mechanism. A camouflage system to be less visible to the immune system.
These cells can be very specific geinfecteeerd with Newcastle disease virus and then go dead. What we call apoptosis,
cell death within three days.
We give it intravenously and zaosl with Chris and even if there are tumors in the lung that we inhale with a nebulizer, a nebuliser.
And 1 in 10 have very mild flu-like feelings, but if their temperature is rarely measured temperature and that after
always a couple of hours away. So why do we want in the first two wken before the production of antibodies may be well underway
every day that we give you at least as much as possible to bombard cancer cells with the virus.
Eloy says:
Chris will get now 8 ml intravenously. and the rest I will give the tthrough inhalation. All right!
VO 15:
Newcastle disease virus because the first week each day must be given before the doctor usually on.
Robert says:
As 2 weeks Newcastle disease virus must be given intravenously often we call in the help of a cooperating physician
in the country of origin of the patient. This is often a general practitioner. And we seldom have the huisars not participate. We spend a small
cannula to what you can leave three days and three days darna doctor or nurse can also give.
And we also inhale pateint do. We instruct the patient and that is very simple, never gives problems and may be left at home
or in a different setting than here given.
Chris says:
The first time I got it I came home and had no problems and we were well and truly at home and I come in and I get cold.
And I say now I'm going to bed. And really shivering and shaking with cold. Then I certainly half hours in bed, duvet over it, that was a throw.
Another quilt and Tilly was lying in my bed trying to get me hot. After about a half hour was over and shaking when I got a fever.
This raises quite a while, a few days I had a fever every time a lot, about 38, 39 and then some. And that was basically every time
if I had less to say.
Chris says:
At present it is not advisable to say he is now doing in dendritic cells. We must look afterwards. 4 more time virus and hyperthermia.
And I did the last time the cells had late February and now has four times and then we are in May and then I think it might be useful to cells again.
VO 16:
Newcastle disease virus is always preceded the dendritic cells, and not simultaneously.
VO 17:
A scan of the head in April 2010 gives some hope. There is stable disease.
Chris says:
Well my head I had the scan last Wednesday and immediate results and was stable compared with the scan of January.
January 28, I had the last scan. And Friday I get the results of the scan that they did last Friday.
VO 18: And those of the lung scan shows no progression and stable disease.
Robert says:
There is now just a scan of his back and showed that the tumors in the brains no new ones were added.
Even a first indication that it is better that there is regression of tumors. And everything in the lungs of primary tumor
with metastases and metastases that everything is very stable, no further expansion, but at least a stable process. Clinical and goes well with Chris.
And if you see him you would not say anything at all that is wrong with him.
And I think you can say that the Newcastle disease virus can be an alternative to chemotherapy.
VO19
Chris is exactly one year under treatment at the Medical Center Keuilen. The last year was his quality of life seen
his illness well. Chris or lung cancer will eventually be overcome is uncertain but there is certainly hope.
Chris says:
I go twice a week for therapy and then I get some exercise. Since I got that virus my condition is somewhat less and less I can.
But normally I'm used to and the last time I drove over 30 minutes on a cross trainer so that's fast-paced.
VO 20:
The approach of the Newcastle disease virus has ultimately made a total remission .. Struggling mid-July
Chris is still with metastases in the head and is available in both the lungs and in the case of mild head progression. Yet
Chris's physical condition is still good and Chris Tilly, and give the courage not to.
Chris is now 2 years on with metastatic lung cancer and with excellent quality of life.
C: 21::
More information about dendritic cell therapy and hyperthermia can be found on the websites of cancer actueel.nl and the Medical Center Cologne.
