: Loes seems her disease with metastases to overcome on the kidneys of Waldenström, to keep under control, with the help of Wood smuller diet and supplementation. It is excellent with her. Update 1 april 2012
14 december 2010: Loes seems her disease with metastases to overcome on the kidneys of Waldenström, to keep under control, with the help of Wood smuller diet and supplementation.
Loes let me know that it still goes fine with her. She lives a perfectly normal and high porima life and still plays tennis. I think Loes now can say they destroyed her disease under control heft. Al General wo0rdt said that the disease of cancer is not curable form of Waldenström a. But now lives for so long with her illness Loes without progression that it seems as if they are in any case has found a way to keep this under control. See also story of Antoon also using the same disease still a fine and kwlaitateif life.
Any questions and comments about the story of Loes you can mail to us. Questions and comments we will be forwarding to Loes. On everything remains our disclaimer of power and Loes as a welcome addition to her story, we see what we have to further experience stories of cancer patients on the page your story. For which our thanks to Loes.
april 5, 2005: Loes left us in a brief e-mail and subsequent phone call know that it is still very very good with her. She is now a year off of the leucoran and the markers and values important for her illness and her damaged kidneys remain stable or Macroglobulinemia are even better. Loes tennis a lot and lives a normal life with excellent quality of life. What a nice proof yet again that a complementary approach very much may mean for cancer patients. But read story of Loes but under this short message on current situation.
This was her rash of last week, as they emailed us:
I have had a rash again yesterday and am in joyful mood because everything is still stable.
IgM 11.41 Creatinine Clearance 243 28. Leukeran is long from my body so only those with I love the boel however nice of pills Valstar stable. And I feel excellent. As I told already on the forum: I don't have the feeling that I am sick. Absolutely nothing and have excellent feel and brand energy. Nice right?
I'm going to be a good summer.
Groetjes Loes
13 september 2004: Loes left us know that a new audit reveal that everything still stable. This was her short email:
Am this morning at the nefroloog worked for the rash. The kidneys are beautiful remained stable. Kidney function 27% and IGM 10 "
Beautifully of course if you read all this from any situation Loes has achieved. Read below how her story of her disease with metastases in the kidneys Waldenström under control with diet and got the wood especially smuller certain additional nutritional supplements. Still a very special story.
Loes fights her with great success on the kidneys with Waldenström with metastases and leucoran and the additional Wood smuller diet certain nutritional supplementation.
Loes is one of the people who from the beginning of cancer-news contact me was looking for. Also because Antoon, co-founder of the site and fellow initiator of the film, by the same disease, Waldenström if necessary Cross as Loes was affected. The difference between Loes Loes and Antoon is that withparticular had many problems because her kidneys were. Since 2000 we have had regular contact with each other and could tell something positive every time yet Loes. Loes emailed me a few months ago that it still good with her went and that they wanted to tell her story to other cancer patients. Two weeks ago I went to visit and there she told me at Loes the following story.
Loes is a woman of around sixty (but looks like fifty) that if they swing the door there beaming and energetic look. And as it turns out she also feel. She plays tennis regularly, is captain of a team competition women who plays (1st class) cycle a lot together with her husband and lives at this moment a qualitatively excellent life. Travel a lot and is very active. How different was that beginning 2000.
For year 2000 are increasingly tired and it was felt Loes even so much that they sometimes just lost her balance. ' I walked through the House and sometimes staggering when I felt so bad I'm three days in a row me to the family doctor gone. " This referred to a hospital where blood tests etc Loes. ensued. There came out that her creatinine content was far too high (377) and her kidneys laity not to function well. Fining digit (from urine met) was 20 according to what the doctor meant that her kidneys only functioned for approx. 20% and soon the word dialysis ring fell. Loes, of course was shocked and felt instantly a strong resistance:: rot ' dialysis means that if you begin installing you there your whole life to get stuck and I saw it already for me, of a vital energetic woman I would be invalid, because so fretting to house bound I saw it for me '. Loes majored in home dialysis and was her feeling even stronger this yet to argue for as long as possible because this seemed to her no pleasant prospect. ' I'm not going to dialysis they repeated every time'. Nefroloog if both against her against her oncologist.
Why the kidneys no longer functioned was further examined. In the meantime it was creatinine content accumulated to 503. There was a bone marrow puncture and nierpunctie done, and an echo of the kidneys.
And the next blow was handed out. Loes showed bone marrow cancer- disease Macroglobulinemia -to have but also with metastasis on both kidneys. A very rare combination. The nefroloog-nierspecialist-in an academic hospital to which reference was that they are beautiful Loes said her kidneys in form but never had that this could well go function. I can do nothing more said the nefroloog, and he made an appointment to further prepare for the thuisdyalise Loes. They should choose hemodialysis, 3 x per week to the hospital or home dialysis.
Meanwhile was Loes a fewmonths advance and was the middle of the summer 2000. A bone marrow transplant no longer belonged to the possibilities for Loes was too old. The oncologist wrote Loes 6 mg. (chlorambuciel) for, daily in leukeran. But only her physical situation deteriorated as Loes.
Her platelets and leucocytes were much too low and her renal function at the end of september 2000 was still only 11%. In consultation with a haemotologist leukeran was in a few months, reduced to 2 mg. per day. Incidentally revealed the IgM, an important marker for Waldenström, Loes not dramatically high, namely 12 and this is in all those years never suffered much and in fact remained stable. There is little variation in one-time accrued to 19, and back to 12.
To 11% at the end of August when her renal function has decreased she comes via the website and mail group of the IWMF also in contact with Antoon who has joined. Loes then takes on the advice of a friend, contact a well-qualified orthomolecular physician.. Loes goes to doctor Valstar because who also accompanies Antoon. When she tells her an appointment once had to resist Valstar: ' Madam if you are going to dialysis you are doomed. " He does have had equal afterwards, but that morning at 8.30 a.m. on the phone as one of the first sentences to communicate to a patient that you can't do as a doctor, I think. Then you have no understanding for the emotional situation ofa patient. Loes: "I have sent him a very angry mail" fortunately we have that good talking and after that it's become much better contact. I have lots of ' due to him. Loes now goes once a four months towards him.
When I asked why she thinks she got cancer Loes she says: ' Valstar says it of smoking. At the time I smoked a half Pack a day and that is of course not really healthy. According to the oncologist has smoking there
nothing to do with it. I do not know. Medical science know still nothing, to my knowledge, what is the cause of Waldenstrom. I am directly stopped again but smoke a cigarette or two per day with a sigaartje filter in between. I cannot continue from and smoking is for me also a form of quality of life and relaxation. But if you can quit smoking then do it. I think this is a weakness of myself '.
Loes let me see a list of nutritional supplementation that afterwards she prescribed viaValstar, I must say a whole list and who want to this list as OPS-Member that we can send. Loes also disables directly over on healthy eating and has very delivery consistently and eat super healthy to say to the directives of the Wood smuller diet c.q. Moerman diet.
The lunch that Loes me voorschotelde was delicious with salmon and raw vegetables wrapped in a large cup coarse and fresh wraps and fruit and raw vegetables and flaxseed oil through them. Delicious.
Already after a month and a half after they switched to diet and supplementation is better with Loes, because its energy is what is phased out also to back and leukeran 2 mg. per day has also less burden of them there. Loes let me see the charts and there is still a rising line in renal function.
Loes also tells me that she always asks copies of her medical reporting and blood results soto stay fully informed calmly, the home can check and thus also other doctors as in her case bv. Valstar good information. Incidentally, her several times with the Valstar recommends leukeran dares that still does not stop but Loes. In 2001 a blood transfusion because her HB gets Loes is very low (5).
Loes has once tried with her oncologist about the complementary approach of doctor to talk but this orphan that af Valstar and said her: not scientifically proven, I believe not. She decided to further her own (mode) directly yet to go away and the continued use of supplements Valstar. She took herself never to talk about it with her oncologist unless he himself would begin.
Her situation until the summer of 2002 remains fairly stable. Her kidney function goes into a half years to 17/18%, but no longer need be better though with those values them according to the haematoloog, where they asked her for a second opinion, not to the Waldenström dialysis.
July 2002 is the leukeran reduced to 1 mg. per day. Valstar re-iterates that is rather bad than good leukeran for her, but dares not totally stop Loes. However, if after one year renal function has improved steadily until the end of november 2003 to 27% functioning and the creatinine value to 243 are down, goes to her and they discuss also the Loes haematoloog leukeran total stop. Also because the platelets and leucocytes are worse again.
Loes also used 1 x per 14 days epo (Aranesp/APO-just as something like the better-known Eprex) because they are very low by the HB content has gotten a leukeran. Now sits her HB constantly on 7.5.
Valstar haematoloog agrees with her and proposes all to stop the pause and to see how the leukeran continues. He takes contact her oncologist says also that they here yet in the "gray area" are dealing with today. Her oncologist is in second instance here agree. He wanted to stop initially only three weeks.
Prior to that conversation still against her in november 2003 had the oncologist said that he was very surprised how good Mrs Loes looked: I saw you ' sit in the waiting room and thought to myself how is it possible that this woman doing so well and looks so good. I would however herein agree me deepen and come back to you later. 'Loes is totally enthusiastic: ' he would finally wish to know more about the complementary approach and my lifestyle? ' The oncologist in February 2004 at the next control point promises to come back.
From 19 February 2004 and in May with the Loes stops completely leukeran is a next measurement and research. Loes feels very good and vital. She plays tennis alot and actually does everything for her illness appeared again in 2000.
/At the end of our conversation stings Loes > her thick clouds of smoke filling the room sigaartje.. I think certainly if something has comical again summarizes why she thinks the Loes so well with her is gone:
a.. first the transition to healthy, fresh and vegetarian food
b.. the supplementary vitamins and minerals via doctor Valstar (OPS-members can we send the list)
c. remain Optimistic and always you good orienteren. and not on 1 opinion/approach proposal going off. I have lots of books read, sat off the internet, and daily detection for almost everything a second or sometimes even third opinion requested.
d.. many supporting my man, my dear son, and Roel and sister Anny
friends sought and received. Thank you dear people.Without emotional support red you don't.
e. continue to believe in a good outcome. and enjoy daily life. Not too far to look forward and plans.
f. Ensure that the doctor you don't overwhelms. because you don't know what is said and what the consequences are. Always time for you and take a rest and meditate for a polling says yes or no against treatment proposal. And take information you yourself have always looked up to your doctor and make printed out beforehand the questions on paper for you at a doctor goes along and preferably always take someone along who not too emotionally involved and let them drag it unwillingly.
Better a good friend than you man if that friend also can take at least that emotional distance. "I am nowadays more with my health than with my illness."
Finally, still what the oncologist tells Loes with referred it back. The oncologist has summarized the experiences of Loes and suspects in a case study therein that the combination of EPA and an interesting search option would be for leukeran patients such as Loes. She is discussed in an internists meeting somewhere in May 2004. This oncologist attaches no value to the total operation of extra vitamins, minerals, and healthy diet. This happens often left unspecified remains unchanged. At least I notice that people who participate to a trial with bv. a new chemo and that additional healthy eating and extra orthomolecular get support doing better than others from a trial that take absolutely nothing to support. In this case I think that doctors at Loes Valstar and in that internists meeting also should be informed because in my eyes, the oncologist represents beyond a few essential issues in his case study not to mention a number of important issues. And on the basis of the medical reporting is very clear to see in the charts what and when something has had effect. And then it would be for a proper display of the recovery that occurs when the additional supplementation and healthy lifestyles Loes (diet, a lot of movement/sports, optimism etc.) at itsshould be at least mentioned in the case study report of this oncologist is my personal opinion. Left unspecified remains unchanged is the comparison with his miraculous recovery also Antoon Waldenström's disease too coincidental to not also create an entry of this supplemental resources and lifestyles. Persecuted.
