Hemmie survives five years non-small-cell lung cancer with targeted approaches are often complementary, but now it threatens to lose the battle. Hemmie despite all treatments with radiation, Tarceva and complementary approaches (Non toxic agents, hyperthermia, dendritic cell therapy, etc.), unfortunately more and more metastases in lungs and brains.
Recent developments in lung cancer are among cancers - lung cancer
May 20, 2009: Hemmie asked me for his current situation, it's getting worse with him, his story to add. I put this down since it is the chronological order of his story remains intact.
Report Hemmie Berentsen Lung cancer patient.
Period May 2004 - May 2008. date May 9, 2008
Best people. Dear reader,
It has smoothness while before I could write this report. I wanted to write only if I could have overcome cancer. Now I think differently. It is a miracle that I can write this report.
When I heard that in May 2004 I lung cancer had type non-small cell lung cancer spread to lymph nodes mediastum, was just the report with regard to the guidelines for oncologists in NSCLC. I read it day and night and thought what do I do next. I had a tumor near the heart base of 13 mm and 5 lymph nodes in mediastum reasonably small. But I was therefore inoperable. The lymph nodes were too unfavorable. And that was just good clone ... ... ... ... ... ... .. t e.
I am a man born on 1.6. 1955 and have two daughters now 20 and 23 years.
Here the initial text of the guidelines for doctors, etc. on non small-cell longkanker.van 2004.
General
Literature review:
Problem
Per year in over 8,000 new patients a lung cancer diagnosed in about 80% of them involves a non-small cell lung cancer (NSCLC). 1 About four in five cases involve men. Although the incidence in men is declining, it remains the most important to them
cause of death from cancer. In women there is an increasing incidence. More than 85% of the
lung cancers linked to smoking. The median survival after diagnosis is eight months, and after five years is 13% of patients still alive. 2 Only 25% of patients eligible for curative treatment, such as resection of the tumor. This group has a chance of cure of about 25%. The rest are do not qualify, because the tumor locoregional spread, has disseminated or because patients because of their condition, surgery can not cope. 3 4 Despite diagnostic and therapeutic progress is distribution over the stages e nth survival for patients with NSCLC over the last 15 years is not significantly improved. 5
In 1990 and 1997, CBO consensus texts published on the diagnosis or radiotherapy for lung cancer. July 6 In 1999 the scientific societies of the Dutch Association vanArtsen for Pulmonology and Tuberculosis (NVALT) and the Dutch Society for Medical Oncology (NVMO) held a meeting on the treatment of patients with advanced NSCLC. Formal. Evidence-based. Guidelines for chemotherapy, surgery, counseling and follow-up are lacking.
Therefore, the Association of Comprehensive Cancer Centres (ACCC) and the NVALT jointly initiated a multidisciplinary,. Evidence-based. directive to develop on both the staging and the treatment options for NSCLC. 8 for Healthcare Improvement CBO issued its methodological expertise and logistical support.
Objective:
This directive is a document with recommendations to assist in daily practice. The directive is based on the results of scientific research and opinion aimed at defining good medical practice. It indicates what is generally the best care for patients with NSCLC.
The directive provides recommendations on the diagnosis, treatment, follow-up and forms of
assist patients with NSCLC. The guidelines can be used when giving
information to patients. It also provides the clues for such transmural
agreements or protocols to promote local implementation.
Specific objectives of this Directive for NSCLC are:
- Location of the PET scan in staging of lung cancer;
- Location of induction chemotherapy in locally advanced lung cancer;
- Location of concomitant chemotherapy and radiotherapy in lung cancer;
- Decide on acceptable waiting times in diagnosis and treatment as well as
centralization of certain care;
- Specification of different surgical options.
Audience
This directive is intended for pulmonologists, (chest) surgeons, radiotherapists, medical oncologists,
GPs, oncology nurses, IKC-consultants, pathologists, psychologists, radiologists,
nuclear-medicine physicians and epidemiologists.
Output Questions
In the spring of 2002, the National Lung Cancer Study Group conducted a survey with the aim of bottlenecks in daily practice and the organization of care for patients with NSCLC inventory. It was also a list of potential clinical questions included. The questionnaire to a random sample of practitioners sent the question to answer in their
oncology committee to formulate. There were 26 questionnaires returned. From all regio.s with a
comprehensive cancer center has received a response. Both academic and non-academic
hospitals responded. Based on the results, the clinical questions and a final prioritized list of 24 questions drawn out. This focus on pressing problems in the daily care in the Netherlands. The clinical questions (see Appendix 1) form the basis for the various chapters of this Directive. The Directive aims ... .. (See Internet)
I made a kind of objective sum of numbers in statistics, such rekengok, and whatever else I wanted with my life. How do I go live? What an impossible demand and potential. The duality of life and death is a life together.
I read that with chemo and radiation between 5-15% survival if you are still operable.
Also that the quality of life can significantly deteriorate as a result. Maybe.
After a second opion at the VU University Amsterdam, they gave me some more percentages but also
me with chemo and radiation alone could save my life. Nowhere else along.!
I consulted with friends, wife, kids, my homeopath, my doctor what to do etc..??
I renewed my homeopathic treatment from Dr. Spaargaren gone, with the knowledge that this alone could not solve. Have with NTTA physician Dr. Bertil Klijn the possibilities are discussed.
I just decided that I would die ie. I decided not to do chemotherapy and irradiation.
Read a phrase .. "your own show live longest" stuck.
You're looking further and I discovered the cancer-current site of Kees Braam and joined Dr. Gorter to Koln on consultation. This was right well, despite all the expenses. I went for it and experienced it as an essential contribution to a proper determination, whatever that may be.
I am now four years in the MCC under treatment. I have local hyperthermia, total hyperthermia , dendritic cells , New Castle virus and enclosed medication and talks.
The first half year with a frequency of 2 times a week, after a once a week. The 2 nd and 3 rd year of a once a month to once every three months. Meanwhile, I was so good homeopathic treatment and psychosocial support Simonton therapy and its orientation. Great.
My oncologist Dr. E. Lammers (Gelre Hospital pulmonologist) respected my choice and is still open to my way which I can and want to go. That is very special and rewarding.
Friends of mine have HUB; Hemmie fire up the UUT. Under the motto: The Times May.
HUB has various lectures and activities to keep greenhouse selling. The treatment is not expensive, but costs a lot of money. Brothers, sisters, father and friends and family have helped more than great in recent years.
It's also great that you meet, and just get on your path. Yesterday, my landlord
a refund of rent for supporting me. Fine, touching and wonderful support that.
The Cancer:
From 2004 until January 2008, the tumor has grown slightly from 13 mm to 23 mm. Each scan there was a few millimeters growth. Harass and annoying every time. You hope and hope, but it's still there.
In December 2007 showed the PET scan, always good to do that occasionally, there is still everywhere cancer activity. In the tumor, but also in the lymph nodes. (5 pieces). That was a disappointment.
In April this year 2008 had the scan yet substantial growth of the tumor base to see. The oncologist could not see whether the lymph nodes had grown or increased. So that was a disappointment.
A new strategy was created after it again ..
- I use the regular way since late April Tarceva. The side effects can be severe, but it is not too bad today 05/08/2008. This I have from Dr. R. Gorter approval of my oncologist. Fantastic.
- I have radiotherapy investigated. My tumors have too much radiation field and are close to vital body parts. Such as heart, esophagus and trachea. So that is at best palliative use of radiotherapy .. Also very sorry to hear that.
- My homeopath Dr. Spaargaren Zutphen has again proven his knowledge and expertise.
- I get advice and support in my ongoing process of the NTTA physician Dr. Bertil Klijn.
- Also, the treatment by Dr. Gorter Koln increased to once a week a local hyperthermia with additional medication.
- I also experience that it is now important to have good psychosocial care. Besides his orientation, I supplement the Tabor House in Nijmegen with body-oriented therapy. Life now and the fear of parting play an important item.
-
Continuation: June 9, 2008:
The scan still shows considerable growth of the tumor base. The lymph nodes are slightly increased. But no distant metastases.
Advice oncologist: chemotherapy with radiotherapy.
Tarceva also stop because it does not work 7 weeks after ingestion.
I'm going next Thursday with Robert Gorter further documentation to see what possibilities are there.
It is a disappointment and the resources become exhausted in my eyes a bit. I do get back energy to go against it. What to do? Surrender in the battle is also desirable. That's different than give up. For that I am still physically too well. I can do anything yet. It is told that it is wrong.
This is what is going on and I hope this report for many years to complete in order to keep you informed.
If you have any questions / comments, I hear they like. My email address is hember1@hetnet.nl .
Yours sincerely
Hemmie Berentsen.
May 20, 2009: This Hemmie wrote me today:
Until October 2008, everything pretty goed.Mijn lung tumor was grown slightly in that year. This was treated by Dr. Gorter, where I'm from 2004. I had no physical complaints, it was not out of breath quickly. In October 2008 I have walked the pilgrim route to Santiago from Saragun.
Upon returning, I had a CT scan and MRI scan of my lungs head.
My lung cancer was slightly increased, but there were seven tumors detected in my head.
Still small, but enough for the ground to sink. I experienced this as well then the end of this life in sight. What to do?
Irradiation was found after long consultations with various physicians an option for quantity / prolongation of life. and sometimes also involve quality.
I did not know and felt the fear of death.
I have 10 radiation treatments on my head to do in December 2008 .. It could not tomo radiation.
I've had any side out there and I quickly lost 15 pounds of weight, nausea and very tired. I had a lot in bed and felt that life energy flowed away.
May 21, 2009 Now I'm still too thin, too tired, too much coughing cancer etc. The process continues dormant in my body. I prepared myself for, if you can, my last period.
It is unpredictable and goes his way. I ensure quality by NTTA medication doctor
homeopath. Unfortunately I can not go to Dr. Gorter in Koln, the cost too much energy.
I think this is the final text is mine and Kees cancer is currently very much for the many years of assistance in advice and discussions. There are not many survivors under the heading lung cancer. Shame.
All the best to you good.
with regards Hemmie Berentsen.
