Mart survives with lots of action and support of his daughters for years have metastatic cancer
dated 24/09/2003: Monique and thanks to Linda and Mart to be as open dare talk about their experiences.September 2002 e-mail I get approached by Monique, a young woman for her father, diagnosed with incurable metastatic cancer , and another one wants to know if there are still possibilities for life extension or possibly cure. Her mother was one month earlier, August 12, 2002, deceased and her sister Monique and Linda are very scared now quickly losing their father. Mart has been suffering since the first diagnosis of colon cancer on November 25, 2001. Through our contacts in the Erasmus Medical Center Rotterdam, Monique and Linda and Mart in touch and get treatment at Dr. IJzermans and later Dr. De Wild. Mart can still be operated, and at first glance it successful. Unfortunately they get media in August 2003 that the message again metastases were detected in the liver. The intestines also seem clean. Next week will consider whether Mart is eligible for RFA treatment of his liver tumors.
August 13, 2003 I am in the morning at home with Monique at the table in the garden along with Mart, Linda, and son and daughter Monique, her husband later there's concubines. They want the story to tell of their search on the site. Based on a diary kept by Linda, with my personal comments in between, I will tell the story / add.
08/13/2003: When I ring the bell will be opened by Monique, a young woman, just become a mother again, giving a hand-Mart and I see a remarkably handsome man of middle age. If you did not know you would not say that this is a cancer patient. Mart also said that he recovered fairly quickly from the surgery and he feels very good. Monique and Linda come to me as spontaneous girls who are not open their mouth fell. This is evident from the story they tell, especially since Monique is everywhere, and consecutive calls and writes directly to the doctors when something takes too long enjoying herself. The first part of this story is a copy of a diary that Linda has held:
Report: 23 November 2001 to date:
November 23, 2001:
Night shot of the Maxima Medical Center, after much urging GPs and after severe abdominal discomfort.
November 24, 2001:
Small and large intestines fall out, performance deteriorated
November 25, 2001:
Around the clock 10 at night, is operated Mart, at 12 o'clock at night is called by Dr. Coppert (assistant surgeon) to Monique and Tayfun, with the news that an intestinal tumor removed from the colon and three 7 of the lymph nodes. 5 liver metastases seen on the size + / - 0.75 cm. Monique Oerle to call and then gather with Monique.
November 26, 2001:
Family gathers at the hospital at 8:30 and is further explained what was found during surgery. Doctor (Dr. Scheltinga) says "bad" news on Mart.
December 3, 2001:
Family has had a preliminary conference with Dr. Coppert 11.00
December 6, 2001:
Mart has had a CT scan of abdomen (liver and intestines), and picture of the lungs.
December 11, 2001:
Mart has been to urologist for bladder infection, and has been serving liver ultrasound.
December 12, 2001:
11.00 discussion with Dr. Kruse (Department doctor) on Mart
December 13, 2001:
Mart can go home.
December 17, 2001:
14.00 CT lung Mart
December 19, 2001:
15.10 Mart interview with Dr. Coppert about situation, everything is clean (lungs, liver, bones)!
December 24, 2001:
10.45 MRI liver Mart (because the tumors seen during the surgery can not perceive on CT)
15.55 urology clinic, check bladder inflammation
December 27, 2001:
15.30 hour interview with Dr. Keuning (oncologist)
January 9, 2002:
Appointment with Dr. Mart. Scheltinga, because Keuning can only treat the metastases can be seen on scan.
April 3, 2002:
Echo intestine was not seen anything ...
CT scan of liver
And blood
April 10, 2002:
Results of CT liver, bad news .... Metastases were seen, as many as seven pieces, the largest about 1.5 cm.
Editors note: why is not here then choose to remove metastases in the liver by RFA technique ? A radiologist from Rotterdam, please note that told me this spring in Rotterdam RFA is applied after joining Dr. Solbiati been. If you know the storyby mrs. N you will read several times that RFA can be repeated as harmless as the tumors are not too great and here refers to largest diameter 1.5 cm., Which is very small, the RFA closed skin very easily applied. Moreover, I read further that this chemotherapy - 5FU leucovorin - is applied with chemotherapy for liver tumors - except Xeloda - no proven effect on liver tumors / metastases.
April 24, 2002:
14.30 hour interview with Dr. Keuning on what treatment to do.
5 FU leucovorin.
April 29, 2002:
First chemo 11.30
Chemotherapy five days of week 18 = 29 April t / m 3 May, then every Monday to MMC to get his chemo.
May 22, 2002:
Interview with Dr. Keuning, blood levels are okay
June 26, 2002:
Mel born 05.53 pm (daughter of Monique)
July 22, 2002:
Interview with Dr. Keuning, blood levels are okay
August 12, 2002:
Death of Wies 22.03 hours, wife of Mart.
August 13, 2002:
CT liver Mart 09.00.
August 17, 2002:
14.00 hours cremation service / ceremony Wies
August 29, 2002:
Outpatient surgery talk about everything that has happened on August 12.
On September 9, 2002:
Discovery newspaper Eindhovens newspaper, heat therapy? (Editorial Note: Here we talk about the CLT / PDT photosensitizers with non toxic).
September 9, 2002:
Mart "virus" contracted, 4x vomiting, intense headache.
11.30 would get chemo, go phoned to ask if they want Mart just check if he still is.
Is made:
Temperature record 37.1 degrees
Blood Collection
Phoned Dr. Keuning by nurse, recommends a chemo once to skip. We get to take prescription drugs for nausea, pills?. Again called "pills do not help when you immediately vomits." Inserted to 14.15 interview with Dr. Keuning, suppositories have the same purpose. We get "accidentally" the results of the CT scan done on August 13, positive response to chemotherapy, the seven meta-states do not grow, one no longer visible. Everything is stable. We explain various treatments that Monique has found on the Internet, Dr.. Keuning respond positively and will find out along with other oncologists on September 17, we get here Sept. 26 to hear more about. Mart is just sick that day, snaps around 22.00 hours. Slept badly or high light abdominal discomfort. Then it's normal life again continued.
September 12, 2002:
Consultation between Monique and Linda, listing all therapies that have so far been found through -www.kanker actueel.nl , newspapers and Kees Braam.
Editorial Note: When Monique mailed me, I tried it with information from which a metastatic cancer is all on complementary and alternative therapies available at this time. We also have good contacts with some oncologists in different hospitals and by a letter and phone calls from both sides has managed to get an appointment in Rotterdam for Mart to see if a new operation is still a possibility could belong. In addition, both Linda and Monique as OPS member Join our mail (approx. 70 members) and even there they have a lot to me. The exchange of current news but also the famous shot in the arm, how it to tackle a disappointment not give up but to sit in peace to pick up on it anyway so I'm personally big admiration seen how both Monique and Linda, not to mention the other members of the mail group supported each other, etc.
September 20, 2002:
Mart is the secretary of Dr.. Keuning called to come, they want what appointments he will be fully vetted to make sure that if there were no metastases are present.
September 22, 2002:
Letter from Kees Braam, it is to pass on to Dr.. Keuning.
September 24, 2002:
Intestinal Research 16:00, Mart must drink four liters Clean Prep.
This study has shown that nothing is in the intestines, no tumors / metastases or polyps, it has been said that the bowel is completely clean. The research was done under anesthesia (5 mg) through infusion / injection, it puts you in a blur, you're still there but spiritual feel almost nothing.
September 26, 2002:
9.30 CT thorax (chest)
26September:
9.40 Keuning conversation about the possible treatment submitted by September 9.
October 1, 2002:
9.00 hour interview with Dr. Roumen surgery, results of chest lungs, lungs are clean.
Proposed Dr. Roumen's RFA in Veldhoven with open abdomen, also sees something in Rotterdam and will make contact with them.
October 4, 2002:
Linda has called for MMC Veldhoven, the scans are sent over it so that Erasmus of Rotterdam can see (Dr. IJzermans).
October 14, 2002:
Monique call to Rotterdam to ask if the letter has arrived. (Personal story of our family, registered mail) where they immediately get told that the CT scan is sent from Veldhoven, not sharp enough.
October 17, 2002:
Dr. Belafspraak. Roumen from MMC, it is not because of personal circumstances. Monique in Rotterdam or call them something more to know. They indicate that we have come to Rotterdam on October 18th for an MRI scan.
October 18, 2002:
9.30 MRI scan in Rotterdam after a delay because the scan was broken, it is delayed one hour, 10.30 Mart comes under the scanner.
October 28, 2002:
Iron Man has called us for an appointment on RFA
November 4, 2002:
11.45 meeting with Dr. iron man on the Poli General Surgery. He gives us explain to us what he can do and what the various procedures can do for us.
Option 1: RFA, which will not be enough ... and result is minimal.
Option 2: A portion of the liver collection (Section 5 of the 8) and then the remaining part RFA
Option 3: Liver Perfusion (chemobad) and the places he sees RFA (the latter is not possible, he later returned)
Option 3 is indicated as the best option, he suggests that he again in the discussion with all other liver specialists throwing this Friday, and then call us with the final proposal. He "forgets" to call around 17.00 hours call Monique itself, here it is actually option 3 below. He suggests that his secretary Monday, 11/11 calling for an appointment with us, to have an interview with the surgeon who will perform the liver perfusion, Dr.. The Wild. Us some things to explain the pros and cons.
November 12, 2002:
Telephone contact with Sjanet (secretary), we agree that we are our November 14 report to the Daniel de Hoed Clinic at 12:30 for an interview with Dr. The Wild.
November 14, 2002:
Interview with Dr. The Wild 12.30. Explanation of operation. (Daniel de Hoed Clinic)
December 6, 2002:
8.15 angiogram made, Dijkzigt Hospital Rotterdam. Power outage was around 9.30 am ultimately the study.
December 12, 2002:
Results angiogram, it is good.
Mart has normal blood flow to liver (there were only two main arteries are in his liver, some have three, and then it was not continued)
The operation is put.
CEA = 4.8
LC = 9.2
Hart movie made, and blood type is determined by blood injection.
Mart gets told in writing the date on which operation takes place. (Estimated somewhere around January) also has an appointment for December 27 for a chat with the "anesthesia doctor".
December 27, 2002:
Doctor anesthesia.
January 13, 2003:
Mart recording DDH Rotterdam 11:00, Monique and Linda are Monday / Wednesday to the family remained there.
January 14, 2003:
OPERATION 08.00 hours, finally started at 09.00 hours, difficulty in lowering high blood pressure (due to internal stress), operation lasted until 16.00, at 17.00 hours in ICU. There is also a clip of his sealed shot veins, leakage has been 6% max (10% max). This gives them the perfusion unfortunately have to stop sooner.
Mart has 10 days in hospital and was quite restored. Does have two bags of blood needed it, because the high dose chemotherapy has undermined his bone marrow. There was so little blood to create.
After one week he was home but unfortunately Mart was bald, while a local chemotherapy was flush. Perhaps more leaks as expected? Good thing it is growing again. He also suffered from stabbing around his liver. Probable that a subsequent galontsteking been.
February 11, 2003:
Mart to check with Dr. Keunig 11.30 in MMC
February 24, 2003:
CT scan abdomen Mart in Rotterdam
February 27, 2003:
Results CT scans, CEA 2.2,liver enzymes is very high, around 600
March 6, 2003:
8.45 MRCP Scan-Mart Manchester, because he still had severe stabbing around his liver.
March 13, 2003:
9.15 + MRCP rash blood tests, CEA 2.7
March 20, 2003:
Calling for the results to 12.30, everything looks good
April 10, 2003:
Dr. Poli. The Wild 9.45 hours, everything is OK + blood samples
April 29, 2003:
Mart CT 14.40 hours in Rotterdam
May 8, 2003:
Control + Results CT 10.30 + rash blood samples 03/04/10
Had very good news, Dr.. The Wild was very pleased, liver enzymes were coming down (from 600 to 200, normal = 90), CEA 2.7.
Description of situation: "The spread is now looked like blisters."
Come back about 3 months!
Editorial Note:
Until the end of August 2003 Mart is doing well. He is eating normally again, never Mart has chosen a special diet, but eat just as he always did, and he tells me yet another time how good he feels. The day after I was visiting with them should they return to Rotterdam for the results of the scan of July 21 and he does not expect a bad result will come. Unfortunately just fine. Monique mailed me the next day that there is again found in the liver spots. My first reaction was, go to RFA in order to remove these spots, because of the scan revealed that the intestines were still clinically clean. But until today there is no treatment proposal. Between now and rashes - dated September 24, 2003 - are now already more than five weeks. Mi, but I am not a doctor or medical professional so my opinion is just not yet: mi it much time is lost. Like Rotterdam and claims that they have also asked for on our site a way that they signed RFA also perform than skin Mart seems certainly to be eligible. He is a clinical cancer free and there are only a few small liver metastases found. It could be that they are in the wrong place and RFA is no longer possible, but would still be a quick-oriented research and medical advice Mart assurance. Now he lives for weeks of stress about what will happen. Monique and Linda have promised to keep us informed so will undoubtedly be continued. And hopefully with a success story because Mart is already more than a year later than predicted. In this sense, the search and determination of Linda and Monique their father at least one more extra time than average survival.
July 21, 2003:
Mart CT + liver blood tests in Rotterdam 10:00
August 14, 2003:
Appointment to get results of liver scan and blood tests 10.30
Linda and Monique back to Rotterdam.
Result is disappointing, for the operation were 8 spots that were slain by the surgery, so surgery has definitely done its job, but there are 4 new metastases seen on CT scan. These are 4mm wide. His CEA has risen from 2.7 to 4.9. About six weeks back for blood tests and CT scan, then they see how the tumors have developed. There is talk if possible to perform RFA.
September 25, 2003:
Mart CT liver blood tests + 10.00 in Rotterdam. Continuation see updated March 52005.
