September 2004: Jos was ten years ago, a stem cell and appear cured of MDS = Myeloidisch Displastisch Syndrome. Read his wonderful story recorded after ten years, but with visual memory and perhaps an incentive for many cancer patients.
September 24, 2004:At the request of Jos itself we put his story herewith include stories of cancer patients. We have no reason to doubt the veracity of Jos his story, but must be on point out that we have only his story via email are sent are received and unlike the other experience stories no personal contact with him or have had scans, blood tests etc. have a different and verify that everything is correct. But it seems absurd to suppose that Jos and his story does not tell the truth and we find his story is so beautiful and inspiring that we have one hundred percent you can guess his story once read. Well here is our disclaimer applies as in everything on this site. Thanks to Jos and his family that they want to share with others.
Foreword. Hinke's story got me to still come to my story once again to trust to paper. I read her 'experience', through your story, in my mind that my story had already been written but unfinished somewhere on a CD burned it and it still wanted to share it with others. I really lost the assault never been my whole being. I think every day and others just so I have an idea, strength, positivity give so often a hidden world that is visible, even though I realize fully that each individual has their own perception. The farthest verge My memories go back to February 1994. My wife (pregnant), 2 daughters, 4 and 6, stayed in a nice (trusses) holiday house somewhere near Vaals, and enjoyed the beautiful scenery in a fairly strong winter sun. I was sometimes not light up ahead, walking was sometimes a difficult task and one evening when we wanted the Chinese, I prefer the car parked next to the table. I slept pretty bad, was quite unreasonable and actually had anything like it. This sentiment flowed forth until I got a headache in June 1994. Severe headaches was so I went up to the doctor, who told me that stress was the cause and busy at work also participated in the full sense of it all. Bustle and stress at work and in the back of the arrival of a child, I thought it was a likely idea. Bouts of .... I do feel fine again ... .., followed, until our son volunteered. Night to the hospital, the girls deliver anywhere and all that stressed about the birth, I slept for a yard and was really completely exhausted when the visit was known. Heavy Lead was everything to me. This interval also seemed overcome. The fatigue finally hit to late October. A feeling of struggling through my body flushed and I was rude bad, nothing I liked, felt just fucked and got the first signals of others ... .. what you see pale boy. During the New Year was bending down and the lighting of firecrackers and rockets a disaster, as if my brain snapped, my head throbbing, severe headache. I had already been prescribed a cure for cavity against infection, because that was diagnosed by my doctor. At home I read a book and just sat smoking and staring at me. Strange flickers up in my eyes one. A second course had no effect. Pricking blood then. The same day, my doctor came into the bedroom and told me it did not look good, and I immediately had to be admitted for blood because it almost certain that I had leukemia was. That same evening or the next morning there I was in hospital for the infusions. The world went in through me and when I once had a cough came already with blood. I was very still and thought about my last days alive on earth. In my mind the kids, especially my son for 4 months ... ... ... .. he would never know his father, etc etc, the burden on the shoulders of my wife. Looking back on those days ... ... .. the most disastrous ever .. My wife stayed in the hospital bed next to me in my room, we cried hours and there was an anger in my body that was indescribable. I was in a distant past once seized by polio, I fell into a trance. After a puncture in my sternum gave local oncologist that I probably had chronic leukemia Myeloidisch. I asked him what it would look like in six months. He said ... ... a bald head is certainly ... ... .. In a suddenly accelerated everything A52 A few days later I was already on the IVs ... ... .. the first chemotherapy Largecleaning could begin. I wanted it too quickly. In Radbouttraverse Hospital Nijmegen building A52 (blood diseases, oncology) Intake interviews with nursing, introduction to ward doctor, treating specialists. You could not walk the corridors of patients, it was quiet ... ... ... death value around As I was confronted with people (roommates) who had the cure, vomiting, pain, diarrhea, etc etc. I was totally miserable, often cried, felt so fucking terrible. Why me, echoed through my head constantly. The chemo did its job. Hours I looked at the dripping of the infusions, the pumps at my bedside. I shuddered while I realized that I could do nothing. Slowly, I felt empty. Every day blood sample was a disaster in itself, sometimes had interns do this and I felt like a guinea pig, often wrong, very often misprikken, bruising and feel bad in my body. The resistance was less and less things. One night I got stomach ache, I saw every quarter of the night, a slight gap under the door and was in pain. The very low leukocyte levels in my blood, I was extremely vulnerable, and that turned out. At one point I had double pneumonia, peritonitis and septic blood and my intestines were not working. I was given morphine for the pain and began to hallucinate. I saw people in my room that were not there. I saw the craziest chases and a glass behind my bed where I always saw people walking, which still boo bah said. The seriousness of the situation I was not really in the eye. Until my brother through the round window of my room was watching. The realization that he was there, all from the Northwest, at about 11:00 am, gave me a sort of kick. I hit on my mattress and thought ... ... .. never, never, can not, not now not ever. I was on a very thin thread hanging, I learned much later. The doctors and nurses, my wife indicated that family should be informed, because it could rapidly descending a thing. The unknown craftsman (woman) shelf of doctors, specialists and nurses together, along with my still relatively good physical condition, (sounds so idiotic in retrospect), made sure that I share one. battle of the sample have survived. And not only that. Dozen cards from friends, family and acquaintances but also strangers, flowers that were delivered at home by friends and strangers helped you fight to go the support that my wife had the care of my kids, in a word, not three. ... More then great. After they had taken blood from an artery in my groin on several places at once looked at the culprit involved in the blood, and I did at the last minute to administer the proper means to stop the overall decline. I snapped up quickly, but was from 72 kg to 54 kg of weight. Physically I could hardly anything, was lying to me sometimes too much, complete remission was achieved. I have strength I could go home, hospital seven weeks sitting on it. A bed in the room, later upward. It took me fifteen minutes to get to the stairs and was so tired I almost threw up. Driving was something. The drive fast to trees, houses etc. I could just barely. I was very tired of it in my head. The world around me was really nice but too tiring. I slept a lot. People could only get half an hour to visit, I was completely exhausted. With renewed courage to the second course. Dark blue liquid ran into my vein and a nurse said ... ... you can be sick. Less than two seconds later was the first bowl is already full. The influence of the second course was perfect. We are the small holes and corners on cleaning the specialist said. I saw Queen in 1995 Trix was on the tube and in Eijsden afternoon I rode in the wheelchair with my wife on a big flea market at our village, int. Meanwhile, research has been done on blood and bone marrow from my brother, unfortunately not equivalent. Stem cells from myself .... That would be the solution. In 1995, this treatment is wrong at an early stage, but the professor indicated that the results so far were very hopeful. Yes, and who am I, what am I ,,,,,,,,,,,,,,, life motto is ... so let's go. Not all that simple wash. The stem cells had to be taken, so I had to inject myself with some kind of hormone, the production of stem cells, such that the chase from the bone marrow into the blood would come. After all that, I was sort of a spin coupled These pumping the blood left my body out through the mill, and right in again. This happened three times and happy, very happy, I had produced enough cells to recover after the third cycle. The third cycle, the first a final lung function tests, then an endoscopy, heart moviesetc etc. After almost three months at home have been good for their strength, had come. Early July 2005 I received a large catheter into a large vein in my left breast. Got a pump with red fluid and could go home, a sort Rekruutje. In about two days to stuff my body was instilled at night and had to disconnect the matter in Nijmegen. The third course was intended to destroy the bone marrow. What it now pumps, bags of liquid food, medicines to bed hung me was indescribable, all by the vein in my chest. The day had come, the final stuff would be administered. Endoxan was said to me, it was white like water, a small pouch. The 'severity' of the stuff just dawned on me when the ward doctor came in with an apron, a cloth over her mouth and was wearing thick gloves. A vein in my left hand was sought. I asked why not in that great other ... .. No, she said .. is too dangerous and too close to your heart. Then I got scared and thought the good God why must I endure all this. The stuff would be 72 hours work to do. I have swallowed a huge number of pills, but because of the aggressive stuff I got in a dozen. The destructive effect seemed palpable. I felt slow cooking, lamb, and be miserable. This time I got my brains a optater, the thinking was slow, I just was not there at all anymore. An automatic blood pressure monitor stood beside me, every 30 seconds doing his job ... .. .. and I look scary but exciting. Almost all the nursing staff wished me strength. Rate was required. If nothing happened after this session would be the irrevocable death have meant to me. But in the freezer was my life, stem cells, my future. 2 days later it arrived. In a cool box was carried into life. An equally simple for me as a vital action being followed. Pocket on the pole, connect to the stem cell infusion and dropped quietly but steadily within my body ... .. 3 bags. It was now anxiously wait, wait and see if the cells would take up the work again. Soon life was observed and the stuffy atmosphere that prevailed, and I just felt brightened. I was so weak from the last course that many things I had completely missed. I got a blood bag on my right lung, which was a bacterium that could be very annoying. They wanted me to operate, a lung removed, but could not supply the low platelets in my body. I would simply bleed to death by this incident, I had almost a month longer in the hospital, even though I wanted so badly to go home, the courage to uphold was extremely hard. When I physically do it pretty well back in order, but still had the bacteria in my body, I was allowed to go home. It was now mid-September 1995. But I had 3 times a week to undergo treatment with antibiotics to get rid of everything. If I was a limp home plant in the living room. The waving of the trees I sometimes had too many children playing and was really a disaster, though I found them so super cool to see. There came a completely new period. No plants in the room, no pets, no work in the garden, no dishes, milk in small packages, not to parties, meetings with many people, not sick people on the floor, all in all I came home without load restrictions a single pill to swallow, but had about 10 times a day vomiting. The daily blood tests, infusions sitting close, these things were no longer in the picture. If I ran an elderly veeery sometimes when a dishcloth, almost everything was too much for me. Painfully slow, I came back to life, and found a nice drive, even though it was very tiring. I got to eat porridge, which was released again after 2 minutes. Each case was there longer and I strength. My wife was more nutrients in the pie. In late 1995 I sat on my bed in the room and it was eaten with cheese soufflés fries, croquettes, etc. I said ... give me a fries, grease and a kind of poison for my body, but I wanted to taste it. After 10 seconds the fries came out again, but I kept on eating, the vomiting was a kind of life for me. It was like when a key was turned, because I became very quickly the male. The monthly checks were extended to half-yearly, and everything went well. Beenmergpuncties gave very good results can be seen. In April 1996 I started working on the therapeutic basis, in November of that year full time. The senseless huge support from my wife, my children are there, the family, the degree of attention from friends and strangers have pulled me through. Epilogue. Even though there were people who avoid you, people who have never heard of, strangers who careyour fate, the very dark clouds are gone and the sun shines again. If that nasty disease again, I would reveal the battle again. My director said at the time, you have the stats help. I hope people can see my story as support. For others, maybe a little bit of an unknown world opened up and often hidden, but must also admit that you write it ... so even though it is now almost 10 years ago ... ... gives satisfaction. And it was 10 years ago, science has not stood still. If there is anything about stem cells is reported, I am all ears and always say .... I'm living proof. .. Every year around the first week of October, I checked the matter. It remains for me always a very exciting time. Sometimes I feel tired and think almost all ... but hey ... no. Have a busy job, feel generally fine. The cancer has conquered ... ... ... ... ... ... ... .... I hope. Veghel. Jos Schulten End September 2004




