The story of mrs. J. and her successful battle with her metastatic kidney cancer. Ms. J. July 19, 2004 is still deceased.

August 7: From mrs. J her son got an email that his mother July 19, 2004 would die from her cancer. The very positive from internal radiation, as described below thus ultimately to no avail. Does have mw. J is a good quality of life had the last year she told me some months ago when it went to tell her she was all right. Because of my vacation I have had no contact with her husband or son, but will do after my vacation. We wish her husband and son and other family lots of strength in the near future.

B> dated 26 October 2003: Ms. J. brings from her terminally-ill metastatic kidney cancer to a standstill with experimental internal irradiation in addition to the Moerman diet and extra supplementation and a huge dose of fighting spirit.

December 2002 I was called by mrs. J. I've known her for a while through the mail group. J. tell me about the phone that she's original kidney cancer also has spread to pancreas and other organs may still take part in a pilot internal radiation, but as the phone says Kees, it is very difficult to know ..


July 2003, just before my holiday comes in an email from J: Dear Kees, I wanted to let you know that it goes really well with me and my story really would like to tell on the site. I am positively stunned. When I call her after I get a cheerful J. on the line. No, I'm still hear, I'm still working in the garden. We make an appointment after my vacation. September 11 I am in the morning with a cup of green tea in a lovely detached house in the middle of the field anywhere in the Northern Netherlands, where during my visit regularly deer skipping past the window. J. and her husband tell me their stories of the past eight years.

Initial diagnosis: In June 1996, J. first confronted with the diagnosis of cancer. Kinds of complaints had her at a regional hospital and extensive research showed that J metastatic kidney cancer - Grawitzcarcinoom - had. Her thyroid appears enhanced by the spread (metastases) and also around her kidneys are metastases in the lymph nodes and abdominal wall.

Ms. J: I had trouble breathing and felt so often stuffy. Therefore contacted a doctor who first sent me to a regional hospital. It was then that I had metastatic renal cancer with a particularly large tumor in the thyroid gland against the trachea crowds ..

Quote from history in medical report prior to internal radiation which more later: August Right nephrectomy due Grawitzcarcinoom 1996. March 1998 due to increased thyroid metastasis, for which radiotherapy (40GY) on necks, also para sternal metastasis, metastasis and metastasis uteryus dorsal to the pole in left kidney.

History: Since radiation on the thyroid, this stable in size, about 39 cm. etc.

Until late 1999, everything seems pretty stable and J. lives a pretty good life with no significant complaints. J. used it since the surgery, etc. more or less the Houtsmuller Diet / Moerman diet and she feels just as good. But in December 1999, she again less energetic and a follow-up study suggests that metastases are back and in her remaining kidney cancer is new. A doctor still an interferon treatment for the growth of the cancer to stabilize, but tells her not to cure. And J. This is acceptable.

From a medical report: January 2000 - July 2000 Interferon-a and cis-retinoic acid (April '00 Analysis: Stable disease) stopped because of patient request side effect profile. Also made by shingles. (J. tells me later that the course requested by the doctor stopped and that they therefore agreed)

J. The interferon was terrible. Every day she had to inject himself and she felt very bad by it. Also because of adverse events was such a scent that's totally changed everything for J. so stank. Although the medical report stated that the interferon in April 2000 led to stable disease appeared later in September 2000 that it was not the case. The tumors had grown within certain limits though. J. 1.5 years has been too much extra supplementation swallowed by a doctor in her neighborhood, to say the end of December 1998 until March 2000. But it was all so expensive and so many pills at once theyso after a few stops. However, they switched to include additional Flor Essence and Omega Fatty acids, vitamin C and cod liver oil to use. And remained faithful as well as possible the Moerman diet use. September 2001 everything seems to be stable and J. now lives a fairly normal life during this time.

But in September 2001 during an inspection found a tumor behind her pancreas with a diameter of 7.5 cm. And a few spots in the liver. The doctors want her and can not handle. An application to have to start with interleukin rejected. Later shown that pancreatic tumor behind her there much longer but have never been reported as previous scans afterwards closer look at the tumor actually recorded. The doctors who had tumor consciously or not seen / reported.

Continues until the end of 2002 J. even though they receive no treatment in fairly good condition. She still uses as much as possible a form of food as the Moerman diet ( Houtsmuller diet ) added to the Flor Essence etc. This is quite special because oi cancer, especially a metastasis to the pancreas can very quickly cause major difficulties, but not in J. An oncologist tells me is that sometimes a kidney tumor grows very slowly, so this would be a normal phenomenon. More than one year will it be before they get the offer in November 2002 to participate in an experimental trial of internal radiation in the form of kidney cancer patients with Nijmegen Radbouttraverse metastases.

In the medical report, these descriptions of the physical examination, thinking that more than one year ago, a tumor with a diameter of 7.5 cm. in her pancreas was found, the other kidney is damaged and several further metastases were found, this is a remarkable fit patient:

Physical examination: Not acutely ill woman, temp. 37.7 C. blood pressure 140/84 mm. Hg., Pulse 96/min. ra Weight 85 kg. , Length 171 cm. WK: No axle pain, no pain, knock. (More are under all sorts of physical examination results are all in very big words so that we only briefly here)

CT chest-abdomen dated 11/08/2002: Considerable goiter around the trachea with tracheacompressie. few small glands in the medeastinum not excluded. Metastasis in the left kidney pole in 5 cm. Very large package in the pancreas gland zone with a maximum diameter of 15 cm. Finally rip in small pelvis.

CT brains dated 09/12/2002: Considering the strong enhancement after contrast and the absence of edema, where a number of vascular structures running toward the lesion, fits most an arterio-venous malformation spot (left cerebellar)

X-schouder/bovenarm left dated 12/02/11: no evidence of osseous metastases.

The evaluation report dated June 15, 2003 is described below as J. exactly as received treatment and its side effects:

December 2002 118 mCi (131) I-cG250 (experimentle radioimmunotherapy), which grade 2 thrombocytopenia (lowest value 52 x 10 (9 / l) and grade 3 leukopenia, grade 3 thrombocytopenia that (lowest value 28 x 10 (9 / l ) and grade 2 leucopenia (lowest value 2.1 x 10 (9 / l) in May 2003 disposable blood transfusion because of anemia, Hb M 5.7 mmol / l.

In their own words what the treatment of J. now constituted.
J. was first released in December an anti-dust under the code name S-250 injected intravenously. The intention is to see whether this anti-dust adhering to the tumor cells. As shown by the protocol reacts about 50-65% of patients are positive. It attaches to the tumor cells so that they are eligible for internal radiation. The patients who responded well to intravenous then inserted the same antibody G-250 but is now labeled with a radioactive component. This component embeds itself in the tumor cells. Patients must then also a few days to a week in a fully insulated enclosure stay. The radioactive material is to function within the tumor cells and then subsequently irradiating the tumor from within and thus spares the surrounding tissue. The antibody has the characteristic that because only the cancer cells look up and infiltrates. End of this year published the results of this trial. We also know now that a similar treatment but with carcinoid cancer for nearly five years is used in trial form at the Erasmus Medical Centreand also in Antonie van Leeuwenhoek. - Amsterdam to say, but we have not verified, this internal radiation technique conducted trials, but we do not know what to cancers.

June 15, 2003 will be an evaluation of J. sent to her GP:

Discussion: The patient has last six months participated in a radio-immunotherapy study in patients with metastatic renal cell carcinoma. The interim evaluation after three months showed stable disease on CT scan of thorax and abdomen. Unfortunately there is for the final evaluation by CT scan again there progression of the known mass TPV pancreas. The remaining sites are stable and there are no new sites were added. Patient has tolerated the treatment fairly well. However, it has in recent months normocytaine anemia developed after the radioimmunotherapy treatment once every second is treated with a blood transfusion. Also, the recovery of thormbocyten slower and not fully after the second radioimmunotherapy treatment. Colleague M. , Attending urologist alhier take further treatment for patients and will outpatient further prosecution.

Conclusion: Progression of disease CT-thorax/abdomen after two high-dose therapy (131) I-cG250. Referral back urologist here, Mr M. For CT scan results and further guidance.

Afterwards, the progression around the pancreas is also corrected and not grown to be said J. and her husband. There was the report made a typo. Instead of a progression had to be no progression. What an incredible carelessness do this, but as well that can all be done by licensed physicians apparently. A recent CT scan, dated early October 2003 indicated by J. and her husband that everything still remained stable, at least no tumor growth. J. feels good to say.

Or J. her diet that comes close in the direction of the Moerman diet / Houtsmuller Diet (Ms. J. tells me that they figure out everything on their own and no meat, lots of organic fruits and vegetables and oily fish food etc.) and some supplements such as Flor Essence into her situation and quality of life has helped, of course, unprovable, but we are curious about how the results of the other patients in this trial. The doctor did not speak for the official results published in late December. The treating physician J. wants to know nothing about diet and supplementation. He is according to J. and her husband only interested in the success of the internal radiation. Seems like spicy soon appears that the 12 treated patients is that patients are doing well also do something extra there. But is pure speculation on our part and we'll see how this goes. If someone from the other 12 patients are reading and share their stories, we are interested in how it went and what the others have all experienced. We keep things anonymous if you wish.