Kanker-actueel Experience Story Waldenstrom's disease: it seems Loes Waldenstrom with metastases to the kidneys to overcome, to control, with the help of Houtsmuller Diet and additional supplementation

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Experience Story Waldenstrom's disease: it seems Loes Waldenstrom with metastases to the kidneys to overcome, to control, with the help of Houtsmuller Diet and supplementation. It goes great with her. Update July 1, 2011

December 14, 2010: Loes it seems Waldenstrom with metastases to the kidneys to overcome, to control, with the help of Houtsmuller Diet and supplementation.

Loess let me know it's still going fine with her. She lives a perfectly normal and high porima life and still plays tennis. I think Louise will now have to say that her illness be final control handle. All wo0rdt generally said that Waldenstrom's an incurable form of cancer. But Louise now lives with her illness for so long without progression that she seems in any case it has found a way to control it. See story of Anthony also with the same disease is still a great and kwlaitateif life.

Any questions and comments about the story from Loes please mail to us . Questions and comments, we will send it to Louise. Everything remains to our disclaimer and Loes force her story we see as a welcome addition to what we continue to experience stories of cancer patients on the page, your story . Thank you in advance to Loes.

April 5, 2005: Loes showed us a short e-mail and then call that still goes very well with her. She is now one year from the leucoran and markers and values important to her and Waldenstrom's diseased kidneys remain stable or are even better. Loess tennis a lot and live a normal life with excellent quality of life. What a nice proof again that a complementary approach can mean a lot for cancer patients. But read story from Loes but in this short report on current situation.

This was her results last week, as they emailed us:

I've had a rash yesterday and I am happy mood because everything is still stable.

Creatinine Clearance 28 243 11.41 IgM. Leukeran which has long been out of my body so only with pills of Valstar I keep the whole thing still pretty stable. And I feel great. I like the forum said, I do not feel that I'm sick. Feel and nothing brand and have good energy. Nice right?

I'm going to meet a good summer.

Regards Louise

September 13, 2004: Loes us that a new audit reveals that everything is still stable. This was her brief e-mail:
Am this morning at the nephrologist been the result. The kidneys are pretty stable. Renal 27% and 10 IGM "

Beautiful course, if you read from any situation Loes all this has achieved. Read below her story how her Waldenstrom with metastases in the kidneys was controlled mainly by the Houtsmuller diet and some extra food. Still an amazing story.

Loes fight with her great success Waldenstrom with metastases to the kidney with the additional leucoran and Houtsmuller diet and certain nutritional supplements.

Loes is one of the people from the beginning of cancer-current contact me searched. Because Anthony , co-founder of the site and co-initiator of the film necessary cross, with the same disease Waldenstrom, as Louise had been hit. The difference between Louise and Anthony is that Louise had many problems especially because her kidneys were affected. From 2000 we have had regular contact with each and every time something positive Louise could tell. A few months ago Loes mailed me that it still went well with her and that she wanted to tell her story for other cancer patients. Two weeks ago I went to visit Louise and that she told me the following story.

Louise is a woman of about sixty (it looks like fifty) as they opened the door it looks radiant and energetic. And as it turns out they also feel. She plays tennis regularly, is captain of a team of women who play league (first class) a lot riding with her husband and lives at present an excellent quality of life. Travels a lot and is very active. How different this was early 2000.

Spring 2000 Louise felt themselves increasingly tired and it became so bad that sometimes she just lost her balance. "I was staggered by the house and sometimes when I was three days I felt so bad I went to the doctor." It referred loess to an area hospital where blood tests, etc. followed. It came out that her creatinine level was too high (377) and her kidneys did not seem to function properly. Klaringscijfer (to be extracted from urine) was 20 what the doctor meant her kidneys still functioned for about 20% and soon dropped the word dialysis ring. Loess was shocked and felt bad of course immediately a strong opposition: "dialyzing means that if you start so you do your whole life attached to it and I saw it before me, a vital energetic woman I would one brooding housebound disabled , because as I saw it for myself. "Loes immersed herself in home dialysis and even more was her feeling that so long as possible because it seemed to make her not a pretty prospect." I will not repeat them every dialysistimes. Both her and her nephrologist oncologist.

Why the kidneys no longer functioned was further investigated. In the meantime, the creatinine increased to 503. A bone marrow biopsy and kidney biopsy done and an ultrasound of the kidneys taken.
And the next blow was distributed. Loess was bone marrow cancer - Waldenstrom - but also to have metastases in both kidneys. A very rare combination. The nephrologist - a kidney specialist - at an academic hospital were referred to Louise told her kidneys had pretty well in shape but it would never be able to function properly. I can do anything about it said the nephrologist, and he made an appointment to Loes further prepare for the thuisdyalise. They could choose hemodialysis, 3 times a week to the hospital or home dialysis.
Meanwhile Louise few months and it was mid summer 2000. A bone marrow transplant was no longer an option because Louise was too old for that. The oncologist said Louise 6 mg. leukeran (chlorambuciel) for every day to take. Loes but her physical condition deteriorated only.
Her platelets and leukocytes were far too low and her renal function at the end of September 2000 only 11%. In consultation with a hematologist in a few months leukeran was reduced to 2 mg. per day. Incidentally, the IgM was an important marker for Waldenstrom, in Loes has not dramatically high, at 12 and it was all those years and never suffered much in fact stable. There is little variation, was once increased to 19 and back to 12.

In late August when her kidney function has dropped to 11% she comes through the website and email group of the IWMF in touch with Anthony who is also a member. Loes then takes the advice of a friend, contact a qualified orthomolecular physician. . Louise goes to Dr. Anthony Valstar, since it also accompanies. When she was once an appointment had to resist telling Valstar her, "Ma'am if you start dialysis, you are doomed." He does have been right afterwards, but that morning at 8.30 am on the phone as one of the first sentences to a patient indicating that you can not make as a doctor I think. Then you do not understand the emotional state of a patient. Loes: "I gave him a very angry email sent" Fortunately, we have that good of talking and then the contact is much better. I owe him a lot. " Loess is now four months at 1x to him.

Loes When I asked why she thinks she got cancer she says, "Valstar says it comes from smoking. At the time I smoked a half pack a day and that is not really healthy. According to the oncologist has a smoke
nothing to do with it. I do not know. Medical science still knows nothing, to my knowledge, the cause of Waldenstrom's. I am immediately quit cigarettes but smoke another cigar or two a day with a filter in between. I can not keep from smoking for me and also a form of quality of life and relaxation. But if you can stop smoking do it. I think this is a weakness in myself. "

Loess let me then see a list of nutritional supplementation viaValstar they are prescribed a long list I must say, and who as a member OPS this list we want to send. Loess also switches directly on healthy eating and it is very consistently and eat very healthy to say to the guidelines of the Houtsmuller Diet or Moerman diet.
The lunch was lovely Louise voorschotelde me with salmon and salad wrapped in wraps and a large cup coarsely and freshly squeezed fruit and raw vegetables and flaxseed oil through it. Delicious.

After only six weeks after being switched to the diet and supplementation with Loes doing better, her energy is back and what is leukeran because the reduced to 2 mg. day she also less affected. Loess let me see the charts and there is always an upward trend in renal function seen.
Louise tells me that she always asks copies of her medical reports and blood tests in order to stay fully informed, the home can check again quietly and with other doctors in her case such as Valstar good information to give. Valstar also advises her several times with the stop leukeran Loes but dares not yet. In 2001, Louise gets a blood transfusion because her HB is very low (5).

Loess has tried once with her oncologist about the complementary approach of Dr. Valstar talking but rejected that and said to her, not scientifically proven, I do not believe in. She decided immediately on its own anyway (way) to go away and continue to use supplements of Valstar. She vowed to never talk to her oncologist unless he himself would bring him up.

Until the summer of 2002 her condition remains relatively stable. Her kidney function is at half year to 17/18%, but not recover even with those values need them according to the haematologist, where she asked her Waldenstrom a second opinion, not on dialysis.

July 2002, the leukeran reduced to 1 mg. per day. Valstar insists that previously leukeran bad for her well, but do not stop dare Loes. If, however, one year after the renal function improved steadily until the end of November 2003 to 27% function and creatinine decreased to 243, Louise goes to her haematologist and they discuss include the total stopping Leukeran. Because the platelets and leucocytes worse again.
Loess also used 1 x 14 days per EPO (Aranesp / APO - as something like the more famous Eprex) because by the very low OD leukeran content to it. Now it is constant at 7.5 OD.

Her haematologist agrees with Valstar and proposes to completely stop the leukeran and a minute to see how it goes. He contacts her oncologist said that while giving them here in the "gray area" in thetreat. Her oncologist is secondarily agree. He was at first only three weeks to stop.
Prior to that conversation in November 2003, the oncologist has told her that he was very surprised how good it looked Louise: "I saw you sitting Ms in the waiting room and thought to myself how is it possible that this woman is doing so well and looks so healthy. I want this anyway even deeper and come later back to you. "Louise is very excited:" he would do finally get to know more about the complementary approach and my lifestyle? "The oncologist promises at the next check In February 2004 it back.

As of February 19, 2004 Loes stops completely with leukeran and in May following a measurement and research. Loes feels very good and vital. She plays tennis a lot and really do everything for her disease revealed in 2000.

At the end of our conversation Louise puts her cigar. Thick smoke filled the room. Have something funny, I definitely like Louise again summarize why they think so well it went:

a.. First, the transition to healthy, fresh, vegetarian food
b.. The additional vitamins and minerals by Dr. Valstar ( OPS members , we can send the list)
c.. Optimistic and you always properly orientate and not an opinion / approach proposal off. I have read many books, was to searching the Internet daily, and almost everything a second or even third opinion sought.
d.. Great support from my husband, my son and sister Anny Roel, and
Friends requested and received. Thank you dear mensen.Zonder emotional support, you will not.
e.. Continue to believe in a happy ending and enjoy everyday life. Not too far ahead and plans.
f.. Ensure that the doctor does not overwhelm you because you do not know what is being said and what the consequences are. Always take time to rest and think and ask for your yes or say no to a treatment plan. And take the information you've looked always printed along to your doctor and advance the questions on paper before you get to a doctor passes and ideally always take someone with you who are not too emotionally involved and to follow along dragging unwillingly.
Better a good friend than your husband and friend who also least able to take that emotional distance. "I am now with my health than working with my illness."

Finally, the oncologist tells Loes some referred to it back. The oncologist has the experience of Loes summarized in a case study and it is suspected that the combination of EPO and leukeran an interesting study option would be for patients like Louise. They are discussed in a meeting sometime in May 2004 internists. This oncologist attach no value to the operation of additional vitamins, minerals and healthy food. Mi happens so often. At least I notice that people who participate in such a trial, a new chemotherapy and additional healthy eating and additional orthomolecular get support to do better than others that a trial take nothing for support. In this case Loes I think Valstar and doctors who internist meeting them also to be informed because in my eyes, the oncologist this ignores a few essential things in his case study a number of important issues to participate. And according to the medical report is quite evident in the graphs and what if anything has been effective. And then for a correct representation of the recovery that occurs when Loes additional supplementation and healthy lifestyle (diet, plenty of exercise / sports, optimism, etc.) at least should be mentioned in the report of this case study, my oncologist personal opinion. Mi is the comparison with Anthony also his miraculous recovery from Waldenstrom's too coincidental to not even create a listing of these additional resources and lifestyle. To be continued.