Experience stories of cancer patients how to live with cancer and / or survival.
This site has evolved from the experiences of three of us. Anthony (see Antoine medical records ), Shifra and her parents (see Shifra medical record ) and Kees (See Kees medical records ). But we are convinced that many other people with similar stories and experiences. On this page, we want stories consultation and contact with the sender. So you can tell your story, but we at least know where the story is based. You should contact the editor .
Added May 9, 2011: Please read the warning to Dr. Robert Gorter and the Medical Center Cologne. Dr. Robert Gorter has become discredited in Germany and Egypt and we distance ourselves from Dr. Robert Gorter. Click here or ask for detailed explanation of why we are reliable physician Dr. Robert Gorter no longer available.
If you want to support us then through a donation: See registration OPS read before our disclaimer and comments and warnings on our part in choosing alternative and complementary treatments and resources.
Prostate cancer. Tjitte survive very long with metastatic prostate cancer Cryosurgery and additional Houtsmuller Diet and nutritional supplements, but does not heal and finally dies, unfortunately, still
Dimitri, the son of Tjitte we received the sad message that his father last month (June 2001) is deceased to his prostate cancer metastasis. The following story, though very interesting and hopeful, for Tjitte is still too optimistic. We wish Dmitry and family lots of strength to continue processing the loss of Tjitte.
dated October 2000: From the Young Tjitte we received the following account of his experiences with prostate cancer and a new freezing technique:
In current cancer I read your essay on prostate cancer. There was little or nothing for me to read news. When I found prostate cancer in 1999. At first I would have surgery after radiation as internal irradiation (Brachy) was not possible for me. I'm half years been searching (or hormone treatments did during the quest) and I went to the decision to come to America and I have undergone treatment Targeted Cryoblation, which is freezing. It forms the largest hospital of the Presbyterian USA en New York. A hospital with 6,200 doctors and 12,500 people in nursing. It gives you very little or no physical problems and there are now 5 years data (research) are available that indicate that this treatment a survival rate of 87% with <4 PSA ..
Cryoblation targeted. A freezing technique in prostate cancer by Tjitte de Jong
HOW I CAME TO ANOTHER IN THE TREATMENT OF PROSTATE CANCER UNDERSTANDING WHICH INTERNET IS A BIG FACTOR.
My story starts in April / May 1999. I have noted several times that of blood in my sperm hemospermie a medical term is called. I'll refer to my doctor and tell him my findings. He gives me first say something comfortable and not uncommon because there also may be an inflammation of the prostate, seminal vesicles and the urethra. Yet he refers me to the urologist.
I make an appointment at the hospital and during the first examination (DRE) is the first urologist suspicion. During the blood test that shows will be held immediately after the PSA 7.5 to 4 is normal and therefore further research is needed. I make an appointment for prostate biopsy. The second urologist suggests a poorly differentiated prostate cancer with a Gleason of 8 fixed on the scale of 10. (Gleason is the degree of malignancy) An appointment for an interview with three urologist and tell me the bad message. I had previously asked him if I could put on my memorecordertje during our conversation and that this doctor was good. I advise everybody to do the same because there is such an important information interview, which you normally how calm you are, yet important things to your attention (to) escape. I listen later several times for his explanation of what they found, and everything becomes much clearer. Then I type out his proposal. He tells me that in the biopsy in a "bite" of the six, something evil has found and I was therefore a very good chance of recovery from surgery. When I ask for other possibilities radiation is discussed but the emphasis is strongly on removal of the prostate (radical prostatectomy).
At the department of the hospital I make an appointment for the proposed treatment. Subsequently appears happy, for me, that the operation in the short term can be executed and agreed mid-October.
In a study published in June 2000 in the Journal of the American Medical Assiocation which is held among 504 urologists and radiologists showed that 559 doctors in nine of 10 cases and prostate treatment proposals where one specializes in itself. "Until we learn more about current options, the process Deciding whether to use whitch treatment method is similar to flipping a coin" writes Timothy Wilt.
He writes that patients should not rely too much on proposals by doctors when making a decision. He also advises physicians to consider further research on the disease. He encourages them more to look at the results of other studies because they can make clear what the best approach.
The Hague Courant when I seethat waiting an invitation which the Red Cross Hospital in The Hague on Saturday morning three times gives information about prostate cancer and all aspects of the disease to have. Despite the agreement with the hospital I go to it anyway. What a good initiative from the hospital. I see lots of fellow sufferers, often with partners, at least, there were more "interested persons" than I expected. Of great importance was the verbal but also and above all the written information I could lay my hands there. There I found such an article with the headline: Brachytherapy is kinder to the patient. I want to know more, I think. Internet, which I am doing not so long gives me (too) much information as I Brachy typing and then it seemed difficult for sites that are truly relevant to choose and read also because many articles in English have been made and yet my extra effort. (Brachy is the Greek word for near and one can treat a cancer closely by a radioactive source in or around the tumor and their surroundings thus spared)
I discuss my intention to investigate Brachy with my doctor and ask for a second opinion and referral is of course agree. In the full conviction that in Antonie van Leeuwenhoek (AVL) as a cancer hospital will certainly be applied Brachy I make an appointment in Amsterdam ... so ... no.
In an interview with the urologist / oncologist and a few weeks later, the radiologist is Brachy me that not a good option for me. But what I have been experiencing in the quality of the conversations that I consult both doctors and the peace and the time (especially the two doctors together 1 ½ hours) that were for me. I have never felt rushed moment, fantastic ... ... Everything a band again so I can naluisteren again. Again I type out the conversation. My picture is getting clearer for myself and come to a decision in any case not to have surgery and that I discuss with my doctor. He agrees with me. I immediately call the hospital and say the surgery, then confirm by letter that a phone call.
When I am in a February 2000 article in Elsevier reading titled "The unnecessary surgery" I am pleased that I've gone my own way. Prof. Dr. Fritz Schroeder says in this article, and he performed most prostate surgery each year in the Netherlands, they are often useless. He estimates that more than half of its operations unnecessary. And as if these operations have not been dramatic enough to keep the men often about impotence, and many have their lives with a diaper through life.
Meanwhile, I still have not had direct contact with someone who performs Brachy. Internet brings here again the solution. I find the name and phone number of Professor. Dr. JJ Battermann at UMC and I call him. I get it directly to the phone and I can send my file and make an appointment. He also advises "do not". A disappointment but it is clear that I may not have to investigate further.
Before I go to him, I ask my data (files) to the Hospital. It turns that sent to the Red Cross Hospital because people thought had gone without me there to ask however, that the Red Cross hospital I would go with the treatment.
In the letter confirming the telephone conversation about canceling the surgery I have with no mention. Very sloppy. Violated my privacy and I am still not sure whether the hospital my data (information) has brought back to the Red Cross Hospital.
The radiologist at AVL I talk, and so I opt for radiation, primarily in the AVL, but later we agreed it anyway in The Hague to do. It's a whole load to 30 times the A4 to Amsterdam to drive. We start with a 3 months hormone therapy before radiation starts. He will also find me the best radiotherapy department in The Hague. It all seems settled.
The first "hot flashes" (take-offs) will start in December and my weight is noticeably what I do, but also to further it so bad to live. In late December I make an appointment but still solid Westeinde Hospital in The Hague with the radiologist. With her, I discuss the further course of events and also let my PSA determined. In the week before Christmas, I can call and the PSA has dropped to 2.6. I'm more comfortable meeting the holidays. Nowthe information about my illness has grown substantially and I'm not sure what I should do with all that information. I speak a doctor says you know more than I do.
I see in January 2000 an enthusiastic article in Doctor's Guide to cryoblation (Gold Standard). Aaron Katz, MD of Columbia Presbyterian Hospital in New York, talks about this new method of cryosurgery and that intrigues me. His research shows that 97% of men who are unsuccessful radiation therapy, which does not in my case, after two years still disease free.
(Meanwhile there recently, in May 2000, a new study published also research data of 5 (five) years. It was found that a survey of 975 patient studies, 63% after five years a PSA score was <1. The "golden standard 'treatment had a rate of 82% after 5 years. In addition, minimal side effects cryoblation on your health and, very important to me but a very small percentage of men have incontinence problems.
Luckily I have a friend living in NY who was looking for me and how I could get in touch with Dr. Katz and that works fairly quickly. He is affiliated with the CPMC. I get his e-mail address and first contacts. Columbia Presbyterian Medical Center is a very big and famous hospitals in the USA.
His first email I get in early February in which he asks of me for more details and my pathology slides that he wants to see again before he decides to treat me. That I get up in the hospital. The data on health (PSA now 0.6) are easy to send as an attachment via email. This does not apply to the slides, which I send in the mail. I also leave a translation of the conclusions of Clinical Pathologist's Hospital.
Meanwhile the preparations for the radiation by only 0.6 by the PSA is less pressure for me. Before I decide to proceed, I first irradiating the "message" from America to know. There is a scan of the Westeinde Hospital and it shows everything to be okay. The radiation would be minimal burden on me than other parts of the prostate, the computer has calculated that, handsome! This specialist show me how the radiation will be done. I already walk with the cross on my belly but do not know if they are needed.
I ask the radiologist with some trepidation a few days delay to start the radiation because I still have no news from the USA. That's no problem. I think she finds it good that people like me as for themselves. Again such a wonderful doctor!!
I still send an email to Dr. Katz with my decision and issue a few days later I find in my mailbox a message, all right come to NY I'll treat you do not irradiate. I'm not a millionaire because he gives me an approximate price for treatment, I had asked. He also informs me that the score Glaeson not 8 but 9 out of 10. He emailed: I Can Tell You That radiation is effective for Glaesons Not that 9 tumors, whereas cryosurgery can eradicate (eliminate) cell thesis.
Also an advantage if the cancer unlikely event would return the whole procedure can be repeated.
I make an appointment with the secretary of Dr. Katz and then show that treatment is possible only in mid-June so we need only one hormone therapy against it. PSA remains at 0.5 / 06 stand. Well I speak with New York that the research possible in Holland will be done and I will send them. Condition, she reports, they must be purchased within 60 days for treatment. I speak also on me, even in relation to the nursing prices in the U.S., but remain in hospital after going back to my hotel room.
A specialist from the hospital that I consult for the annual audit with a different specialization (GI) tell me what I intend to do. He recommends it to me at such a low PSA treatment to begin, then uncertainty creeps in to me. My doctor however, where I discuss it, encourages me to just do it and go to America.
In the second part of June I was in New York handled. I had a different and much too light absorbed and was therefore very happy that my son had with me, what I have to start without him. Two days before the treatment I had the surgery, and there we met with Dr. Katz and he has a short research (DRE) Two days laterthe D-Day.
Previously thought, I'm out after an hour and that was not what happened. Preparations began at 9 am and at 13.00 I was back on the recovery department. Because I still had some minor annoyances, I still had a night on the department's advanced recovery continue and afterwards was a good thing, although I initially did not want to. The next morning a taxi back to our hotel room that was a sick room.
The treatment is a kind of sequel and called cryosurgery: Targeted Cryoblation. The procedure combines cryosurgery with ultrasound and temperature monitoring that enables the doctor to look at the freezing process and thereby to assess the state of safety and efficacy.
You become a local anesthetic, from the waist, so you will "wake up" and can hear what is said. Frankly, I can say little more than the voice of Dr.. Katz says that: 1 and 8, 2 and 3, 5 and 6, etc. In any case, you feel no pain. A thin catheter that circulates warm fluid is placed into the ureter to the bladder to protect against freezing. In addition to small probes (8 pieces) through incisions in the skin into the prostate. Liquid argon, which is located at the tip of the probe (s) freezes the prostate and the soft parts (tissues) and that gas is within a few seconds a range of minus 40 degrees. After ten minutes the first course is ready immediately after everything happened again to ensure that all cancer cells are killed. Total it takes about 2 hours according to the publication of Dr. Katz. (Mine certainly longer) For myself I have no real heavy physical problems (had). Only at the point where the probes had gone inside his skin and blue sensitive.
After three days for check to Dr. Katz for the removal of the catheter and cleaning of the bladder. The doctor was very pleased, everything went excellent. I'll have a couple of months my PSA be measured once again in Holland but I'm convinced that it is right. (PSA now readopted and that percentage is 0.2 and I was very happy.
As mentioned earlier, the Columbia Presbyterian Medical Center is a very big and famous hospitals in the USA. It employs 6,200 physicians and 12,500 employees. Great but what a fantastic care what class. When I was a few weeks at home I got an initial email from the doctor with the question: how are you and that made me really well. Absolutely no cold, businesslike approach, just the opposite, everyone was concerned and helpful.
Besides the medical center is the Center for Holistic Urology (biological-philosophical theory) part of this hospital. Non-profit, all sorts of alternative research where one is doing on internet. I have included a leaflet with the title: Curcumin Could be "Spice of Life" to prostate cancer patient. This is a study by Dr. Thambi Dorai which he explains the alternative medicine curcumin (turmeric). For anyone who is faced with prostate cancer are advised to learn them.
I am very happy with the internet and with my family doctor who has positive thoughts with me about this treatment. Of course he (doctor) some extra time consuming but I trust that he has some good information in return. I think normally continue to live and am still convinced that this was the best choice for me.
Incontinence problems I did not and that's very reassuring for me.
Internet is for general practitioners / specialists may be a bit annoying for me, I've obviously taken some risks, as I am aware, been that
way with God's help I wanted to go.
Author's 67 years, retired and more reasonably healthy. In his spare time he is very active in volunteer work.
The page cancers in prostate cancer and freezing technique is a press release from a company that performs the freezing technique and study has done. Including addresses where further information. We now know that the VU this technique is also applied to other cancers and probably in other hospitals in the Netherlands, but that we ask.
Contacts
Further information about prostate cancer (although about nutrition and supplementation I'm afraid they have little or nothing about) is available from:
Prostate Cancer Foundation Contact
P / a the Dutch Federation of Cancer Societies
Sophialaan 8
1075 BR Amsterdam
Tel. 020-5700545
On supplementary nutrition / supplementation in prostate cancer you can get information at:
Foundation National Fund against Cancer (SNFK)
Tel: 020-5304933
Email: info@snfk.nl