8) September 6, 2002 Berrie is deceased.
January 10, 2010: For updated information on treatments for brain tumors go to cancers, brain tumors and / or see our current report brain tumors .
dated September 9, 2002: I read in the Times in an obituary that Berrie last weekend, Sept. 6, is deceased. His optimism and fighting spirit has not avail helaas.Berrie sent me (Chris, webmaster) following messages which I nearly unchanged, because for me this just shows how Berrie deal with his illness. I Berrie also highlighted the German clinic known as very advanced in brain surgery. It is the International Neuroscience Institute (INI abbreviated). Website is the www.ini-hannover- and they are there specialized in neurosurgery. See also stories of Frank, your story, number 10 and Yanou story . Both live and fight with their brain. Similarly, Pascal on his website describing how he deals with his brain tumor. Impressive all the people still fight for quality of life and life itself. I have great admiration for. As also for Berrie, who just keeps doorknokken with my eyes a great irony and humor.
dated June 11, 2002
Last week the second chemotherapy swallowed. With nausea pill.
Which together resulted in: a reasonable week, caused no nausea pill, swallowed the first day and vomited all day. From that day neatly done what the doctor said.
Or half a day each day spent sleeping.
MRI is not made anymore, I have no need, I notice what's happening above: the larger the pool of water the less I can bend, for example.
I do not have a picture.
Third chemo scheduled for June last week
then to France.
Dated May 28, 2002: Berrie Heesen
May I start the first course had to Temo (temodol 100 mg). The cure is as many already know of four periods of one week. I have just swallowed the first. I was sick, felt to lie on the deathbed. My family had the same idea: My daughter went to sleep every day asking if Dad would be the next day. I got out of bed before dinner. Puke, I did not know you-can-puke, it was 5 days for a fight with one's own stomach in the morning and evening. A drama, of course, it is known this side, if I had known everything, I doubt I'd had the guts. Why chemo? It was my own decision to do so, the AMC did not propose this to me, I just knew of the possibility.
Chemotherapy with 2 spicy pijstillers, sure morphine, initiated to combat the headaches. That we got the hang of it. It seemed a good decision.
Week after the chemo I snapped, I understood why they give you rest between two courses because that's what you needed to still have faith. It was the period that the thought of the times came contail of the GP (enthanasie, date to determine the final chord). I knew in
the beginning is not really why I still had to make.
Anyway, after the chemo rapid recovery. Then came the real surprise, I went two weeks trip and never swallowed speed, did not, the effect of the combination of the drugs they say. Dexamethasone will certainly have contributed, but probably the effect of chemotherapy in combination with the pain counters, that was not yet known.
Doctor wanted me immediately of the trip off, I thought, who understands nothing, claiming as usual again no questions (while it enshrined the scholar who had been with it for Valstar!). Trip was bad, too much euphoria. Is there anything more beautiful. He was right that it leads
to quarrel with the environment. I've even compiled a TOP 5: Trappers and souls of painful
enough finished a close friend in the first place. The friend at least cheerfully reported that he had never had been a Top 5.
The biggest problem was also in touch with my son (13) in that period and especially after, is also just recovered after weeks in the refrigerator to have been.
AMC did not insist on the continuation of the treatment, I was fine. I was free of headaches, I was alive again. I had to pull myself through it and set myself a target which is to be achieved in life, otherwise I did not know where this lead would be good. TARGET is set and we're working.
I already have 2x to my house in France. I can not wait again for one more time to go (back on May 22, 2002).
Striking: era building remains a daily problem. No idea of the date of the day, building up a schedule of weeks is not - format of last week, two weeks ago, about three weeks - it always goes wrong, anything with numbers is usually wrong. If I make an appointment, I immediately start to explain that we only have one appointment at the end if I repeat what I wrote and the other determines that it is correct. The counters of the hospitals have met me among.
Or continuing treatment: AMC was only after complaints were again (but I keep taking morphine), VU (second opinion) was just 1 or 2 weeks but was postponed quickly. Valstar was indeed: they are now fully resume messjogge!.
I'm also working on switching from AMC to VU, is something not smooth.
How did it go?
Or the headaches disappeared, I began life with a taxi and got over 6 taxi drivers know where in Mokum a decent conversation was possible. Now I ride now back to normal by the city. For a while I thought that I did not witness, but now it's good. I have already have a workshop full day (from 10.00 to 17.00!) Data.
Still, I get many signals from the head: I hear crackles, probably somewhere in that audience something down, all surreal landscapes of the artists I know are long for reality. The production of illusions in the head is sometimes indefinitely. I was so (example) with someone talking on a sidewalk next was a rake, who was later to me long ago someone (I saw a rake of course later) So the conversation I had about the other person completely disagrees with us was. For me it was a conversation with the three. The illusions, the images appear but have no connection with reality is quite level, I'd have never thought that one woman with drawers Dali himself would experience, now it's long been a reality for me.
What went wrong?
My vision disappeared moremore, doctors thought that this was the result of the medication, Valstar was very clear that that morphie, reduce:
Can you cut those pills? Yes you can do.
And so I became a real FLASHING.
Every day the Tramagetic in the morning and evening cut. That's what I pass a nice doctor who says you should cut your own medicine. Who would have thought that I would be another member of the self-help groups cut.
At the time of the chemotherapy course also problems with the stool, you know all the little rabbit droppings that accumulate on the exit and hide the case, however just like my outlet in France appeared to be blocked.
Affine I was a picker. Jatte just once in a glove
hospital and picking good in myself. Self-help picking alone. I may
obviously not at the table to talk about.
And now?
First the cover of organizing hospitals, now I am good, soon I can not again, some last complete tasks (an accompaniment of a beautiful student thesis which I already half years involved right). The summer will be fine I think now, that was rather different Kees in the fall.
Now I put it to the max, 2 (two) years perfecting.
Scan? I'd rather not. Yesterday Pitch of Ambel ever on TV had a picture of a couple fucking in the MRI, which naturally increases briefly the idea of a scan, but as long as I've signals, which tell me more than anything else. Second operation was definitely excluded by several hospitals in the current situation. Did I already doubt.
What I swallow?
All natural vitamin supplements, although I stopped a few moments was so bad, Valstar would say that's the stupidest thing to do. But then patients are of a different clay than doctors.
Berrie Heesen, dated May 28, 2002




