What were looking back at the period May 2003 to the present difficult or special occasions?
Besides the terrible news that a serious illness in your body (which can result in death) houses are naturally many other difficult moments. The moments when I felt good and thought the road to full recovery to deploy and suddenly a bone marrow biopsy (procedure in which bone marrow cells for research to be conducted) revealed that the disease had returned. Strangely, the feeling (I felt good and was more and more activities) is not completely correspond to reality. The first time (June 2004) that there was a recurrence, I was again 30 hours a week at work and felt very good. The numbers of blood were almost normal levels. Stating that there was a relapse came on too hard. The second time (April 2005) was almost an exact copy of the first. I worked on my recovery after allogeneic stem cell transplantation (this was under the care of the toughest course in the hospital is given) I was really far away and was deeply gone, when a bone marrow biopsy revealed that I have for the second time recur. What a difficult process has been to learn to think in steps. A man (at least that I myself had strong without my planner was also a pronounced) is inclined to think about the end goal (better). In such a time that you learn step by step and not to think in advance to think about certain issues. You simply can not do step two if you have not completed step one. By means of my rehabilitation work including the collaboration with a rehabilitation therapist and efficient plan to work on muscle strength and endurance in order to get back to a level that I could do everyday things. A condition as one to build real sports would be a next step, first run was normal (due to the intensive care medication and after long having been bedridden and the updating of the cytotoxic drugs vincristine, my nerves in my feet and legs so that had affected my gait and coordination in my legs is limited / was) the first goal. In rehabilitation, I will in the 'Rehabilitation' dwell. Something I personally had very hard were the times when I was in the hospital. Especially when two weeks had passed and I felt sick, this was a big problem in my mind every day was a torture. You miss the home that you are a member of the family and the atmosphere is more relaxed. You also have more control over your schedule. Hospital saw the daily routine like this: Average daily schedule 7:00 they came to measure the temperature, heart rate measurement and should be taken place on the scale. Since the days in a room of about 10m2 and the beds are not long known for their great a comfort it was arranged that much of your nights awake and when you sleep had caught just so they came along for the daily weighing and measuring round. 8:30 did you usually bring breakfast (personally I found the food tasty and not really the way it is "served" does not contribute at all). The choice was different types of porridge or bread. 8:45 often happened that while eating the nursing blood was reduced. This was done by simply pricking sometimes (as you have been given more chemo, the veins worse and is becoming increasingly difficult shots) or they "tapped" the blood by using a Hickman catheter (the Hickman catheter is a flexible plastic tube. It is performed under local anesthesia in a large artery in the neck is placed through a subcutaneous tunnel on the chest out). The advantage of the Hickman catheter is that the chemotherapy (and other substances through the infusion) is administered by Hickman (downside is that sometimes an infection at the place where he comes out from the breast). 9:00 shower / wash (this was dependent elastic and sometimes it was dependent on whether you own was able to shower and not weakened). It happened to me that I could from my bed / and then if I was in bed by bed to nurse crops. I found this hard to accept sometimes felt 'humiliating'. 10:15 There will be coffee / tea or other beverage of your choice (within the range) is served 10:30 The doctors come by for the "daily round" 11:00 when I felt I tried to fit exercise bike to bike 12:00 lunch (hot food) 14:30 there will be coffee / tea or other beverage of your choice (within range) are served. 3:00 p.m. 5:00 p.m. Visiting bread meal (choice of bread / soup and div. Types of porridge) 6:00 p.m. to 8:00 p.m. 8:00 p.m. visit watch television or read until you went to sleepGenerally you get a number with each meal you have to take medications (for nausea is bad food, medication is often a disaster). In acute lymphocytic leukemia, the patient to avoid infection is very great attention to oral hygiene. After dinner and before bedtime, the teeth should be brushed and rinsed with several drinks (have a disinfecting effect taste often very dirty). In between, it could be that the more often you nurse stopped by for example chemotherapy administration or other acts. Also, sometimes for an investigation picked up (you might have with a surgical mask on the ward off). Finally, about the food, every day you got your lists, you could fill the next day to eat while you had a choice of standard products on sandwiches and hot meal usually consisted of about 3 options. It think what you wanted to eat the next day I noticed heavy gasps at you and point to the times when you yourself could take home what you wanted. Because infection / bedervingsgevaar is often not allowed to family / friends food / flowers / fruit with you (the department explained it always increases). The urge to 'escape' is occasionally great if you realize that this is the path you must follow. Something that I found difficult were the times when the visit and Fleur especially in the evening at 20:00 hours had to say goodbye. I felt at times like this you lay all alone often than to watch television to pass the time. Around this time is greatly reduced and the nursing team are busy taking care of all patients (patients who were very sick were obviously the most attention). In periods where I felt good was the departure times lighter and tried 'just one night of television "out of it. Fleur (also around this time that other visitors left) has had this feeling very strongly, for her it felt like I left (again, my physical and mental condition is a barometer). These were some really difficult times! As I often was in the hospital (because the cancer coming back, I had more recording periods) was the time of saturation (when I really was sick) faster after the moment of recording (once you have one hour was in looked like one hour or one day and one day a week). Are isolated on the different views per person. No one feels as natural as a fine insulating only one person likes to be alone and the other find it more comfortable to several people in a room to lie (which has advantages and disadvantages. Benefit: You can your feelings with peers discuss. A disadvantage is that you do relatively little privacy and others 'misery' experiences) Like many of you may know to chemotherapy nausea as a side effect. The extent to which this occurs depends on the type of chemotherapy and is different per person. The moment you're sick, a look at the food list, or smell of food too much. If the nausea went away there was always a sense of relief and urge to eat whenever possible and thus a bit of strength. The controls (which were twice a week and then once a week) are always times when we are very nervous (this is partly because there are a number of times that a relapse has occurred because a control was detectedcome).
